Post MVD surgery help

Just had MVD surgery on September 12th. After surgery my mouth was numb but felt better. I was hopeful for the first time in 4 years. Now I feel like the pain is coming back. I’m so discouraged. It’s really hard to tell how the pain feels because of the numbness. The bottom left side of my face and half of my tongue is numb. Has anyway had this happen after surgery? I’m off pain killers because I had terrible side effects. Any advice would be greatly appreciated. Thanks!

Hi Struck,
Welcome to LwTN, I know it can be discouraging BUT from the collective experiences of people here in this group I can tell you that some feel TN pain the first few weeks/months and then the pain settles down, others wake up from MVD pain free and can still have TN pain throughout the recovery process. There’s no rhyme or reason.
I had MVD in April and was told numerous times it can take 6 months to a year before we are fully recovered from the surgery.
At 5 months post op I had a return of some pain, but at least it is so far responding to the tegretol. ( pre-MVD my pain was resistant to all meds and progressing )

I think most important thing is managing the pain you have and try really hard not to stress it could just be pain from the numbness, or your nerves healing!
Try and think positive, it’s still early for you…rest and hopefully you’ll see a positive change.
Huge ((( hugs ))) Mimi