i agonized over surgery but meds weren't working and it was getting worse, visits to the er for pain etc. I finally said nothing could be worse than the pain so i gambled and did the mvd. You know it's like any other surgery really, you get the gown, the iv everyone talks to you and then your knocked out, you wake up then someones telling you it's all over to wake up. I am sensitive to antithesia so I woke up to puking, most part of the day. No pain youre loaded up with drugs. Then the next day your up eating and well you donn't feel the best but nothing like the hell you have been through. Your neck is sore, your tired big time, in my case i feel like my ear is water logged. I'm told it will go away. I had mine a week ago. Recovery will be long, I am tired all the time. I am slow now, have to take my time doing things. I plan to go back to work next week. I have a dest job so not so bad. I just want to heal get these stiches out and my hearing back but i would do it again in a minute to be painfree
Update....... I am still waiting on the cream every pharmacy has to send it out 2 to 3 business days So not later than Friday I did get a chance to talk to Dr.Casey he says from my description I have type 2 since that was the first sensation I felt but I know think that several years prior to my first flare up I would get a "sensation" in the area that my pain now starts and dr said that it must be form my gums receding which they r not. so tn2 I believe has a l lower % of success rate anyways I know am having mostly the shocks with some burning that comes after the shocks I am getting no relief from the meds I can not remember much else that was said never talked about my mri I am thinking of having my husband call and talk to him..I did email him some things...Has anyone that starte with the tn2 and turned into tnl had success with the mvd???
That is what jen told me not dr casey i was a little confused
Kc Dancer Kc said:
I know MVD can have a long life..... I don't know if she was talking about same nerve getting recompressed later or what....did you try the cream? Please post when you talk or meet with him.....have you watched any videos he has done?
Look at Mimi story of MVD… not Mimi k
I just read you post. I'm from Memphis. Was diagnosed by os with TN - he then refused to send me to neurologists. I suspect my TN is from a bad root canal from a endo here in Memphis. This root canal was due to a large foreign object in a grilled chicken wrap that I bit into on July 6,2013 at a local chain restaurant. I've been denied by every neuro in the city for an appointment. I called Dr. Casey's office and after telling them my Reader's Digest version of my injury, loosing 5 front teeth, unable to wear flipper/particle and being denied to get implants as well as the os wont refer me to a neurologist Dr. Casey's office gave me an appointment. I go on July 8th. I will walk if I have to. How did your surgery go?
cris said:
I spoke with Dr Casey - yep...he actually took the time to correspond with me about my concerns / questions!!! I was so impressed! I live in Tenn and it was just too far to go to Michigan; he recommended Dr Tew in Ohio. after seeing him and having my evaluations - I had my MVD April 12 and have been steadily recovering. I was told it would take me a little longer since I was fairly advanced...I go back this Wednesday for my next check up. It is SO worth the 5 hour drive each way...I too would WALK to see Dr Tew! These two gentlemen know each other (over 20 years). My life is NOW worth living...now my family has the beginnings of the wife, mom, daughter and sister that had been missing and steadily 'leaving' for two years. I thank God above for Dr Tew!
Do your homework...ask EVERY question you can think of...don't be afraid to be afraid!
I wish the best for ya!!
Cris - 2 weeks off ALL TN meds and learning to LIVE again!!!
Hi, I had MVD surgery 6 days ago. After living with TN for 12 years and meds eventually don't work, I'd do anything to get relief. I was very afraid of this MVD surgery, but to tell the truth, it was not bad at all. Woke up in the recovery room then they wheeled me to the ICU for one day, then got moved to a regular room and I was out of the hospital in 3 days. The first 48 hrs was pretty bad. Massive headaches like I just got ran over by a bus. I was allergic to Morphine, so they gave me Diluadid, which is really good stuff. The minute they injected Diluadid into my IV, I melt away to sleep instantly. All I did was sleep. I also had some nausea, which was controlled by medication. There were 2 ladies in physical therapy trying to get me up to walk me. I thought they were crazy. I was so out of it, in so much pain from the headaches, and I was nauseated the whole time. I could only made it from my bed to the door then they realized I'm in no condition to walk. Next afternoon I woke up in ICU feeling much better. This time I was able to walk down the hall and back.. Day 2 in the hospital wasn't too bad. My headaches subsided pretty much. The pain from the incision wasn't too bad either. I am no longer on Diluadid. They have me take Vorco/Vicodine every four hours. By this time, I am able to go to the bathroom by myself and walk by myself (at a very slow pace of course). I am weaning off on the TN med (Nuerontin once a day). I have not had TN pain since the surgery. The only BIG thing that really bothers me is the entire right side of my face is numbed (including forehead, chin, cheek, tongue, teeth, lips). This is the side of the surgery. Surgeon said he is surprised that this happened, but it can happen. It should take 3 months to subside. I hope he is right because it feels weird. This is day 6 and my forehead is only about 10% numbed, my tongue is no longer numbed, my lips and teeth are still 50% numbed. My entire right cheek and chin are still completely numbed.
Has this numbness happened to any of you that had MVD surgery? I can certainly deal with the pain from the incision and headaches since those are manageable after day 3 or 4, but this numbness is driving me nuts.