I started having pain in the roof of my mouth about 3 days ago and it hasn’t left. Trileptal hasn’t helped. Oragel hasn’t helped. NSAIDs haven’t helped. Does anyone have it and tell me what you do for it please. Or I should say PLEASE
Is the pain burning?
Could be Glossopharengial Nueralgia, I have it but it usually starts in the throat an shoots up to the roof of the mouth. Trileptal takes a few days to work and the side affects suck. Dont take more than 300mg 3 times a day to start,(3 days) then if no relief maybe 300 600 then 300 at night. Many years ago I was on 900 3 times a day, it took care of the pain but I did not know who I was (bad stuff) Good luck, Im going to Philly to get surgery for it.
You don’t describe the details of the pai;. I’ve had severe type I paroxysm on my palette, esophagus, gums, tooth roots, etc., and type 2 pain/sensations on the roof and other places. In my 30 years of TN, I think pain in the mouth areas is the hardest to control. Work with your neurologist on tjus. If no help there, you might want to try another one or investigate the various surgical options (if applicable to your specific type of pain.
Have you tried clonazepam? I had a period where I had a lot of “burning strips” over the roof of my mouth as well as feelings of tightness. Making a topical clonazepam solution helped a lot with this. I eventually figured out that the opiod I was taking was making this worse and it went away.
I get pain in the roof of my mouth and considerate it just another pain from TN.
My pain is not severe except when I’m about to eat and I can sometimes get around it by rubbing that tooth numbing gel on the inside of my mouth. That
really takes away all the taste of whatever I’m eating, but when you’re really hungry you get desperate. I have ordered the CBD oil that seems to be all the rage now so after I give it a test trial (14 days) I’ll let you know if it’s worth fooling around with. Good luck. I’m thinking of you.
Thank you all. It’s hard to explain. Not burning, just hurts when my tongue hits it or rubs across it. I got the TCHa yesterday and it seems to help
How do you make it? My husband takes it
Siminative, I used to take a .5 mg clonazepam tablet, and dissolved it in about a teaspoon of heavy cream (this gave it more body and helped it to “stick”). I then either swished it around my mouth, or used a q-tip to swab it on the areas that were acting up.
Thank you ziggy, I tried it and unfortunately it didn’t work for me.