Hello All,
This week I was told by my Neurosurgeon that I have scar tissue from my MVD surgery pressing on my Occipital Nerve. Does anybody have this or know anybody that this happened to. I knew this pain is different from the pain I had with the TN.
supposedly so do i and other cranial nerves. how was this detected and how is it different.
Elaine,
My pain this time started out around my ear and temple. But it was sore to touch in the back of my head also.
From what my Neurosurgeon has told me this is failrly common with somebody that had the MVD like I did to get scar tissue.
I had a MRI but I was told scar tissue really doesn't show up on MRI's but after reading all the symptoms of Occipital Nerves. It is exactly what sypmtoms I have. I read a study that out of 9 people that have ON 4 had the MVD. Believe me though I am so greatful that I had the MVD because I have my life back again after it. And I would do it over again if I had too. I am curious to hear your story. So nice to be able to talk to somebody that can share our experiences with. Rita
Can anything be done about the scar tissue? what do you do about the pain?
so why cany i have mvd. it does scare me. i also have compression.
Rita Kennison Reese said:
Elaine,
My pain this time started out around my ear and temple. But it was sore to touch in the back of my head also.
From what my Neurosurgeon has told me this is failrly common with somebody that had the MVD like I did to get scar tissue.
I had a MRI but I was told scar tissue really doesn't show up on MRI's but after reading all the symptoms of Occipital Nerves. It is exactly what sypmtoms I have. I read a study that out of 9 people that have ON 4 had the MVD. Believe me though I am so greatful that I had the MVD because I have my life back again after it. And I would do it over again if I had too. I am curious to hear your story. So nice to be able to talk to somebody that can share our experiences with. Rita
i wish i knew. how did that occur?
did he mention what can be done about it? could it go down because there is still swelling?
Cara - I don't have any pain in my face just around my ear , temple and in the back of my head.
Elaine - The Dr can't really tell me if it will get worse or better, it's just wait and see. Right now for me the pain is tolerable. But if it gets worse I can have a nerve block done and he told me he can go in and cut the Occipital Nerve also.