Missymut, you are in the right place. I suggest that you first read the US NINDS Fact Sheet on TN, linked from the top of the main page here. Then spend some time with the 70 pages or so of articles in our "Face Pain Info" tab of all page menus. The demographics of chronic neurological facial pain are also explained in a paper called "Who Gets TN", also among the sub-tabs of the FAce Pain Info tab.
Be aware, however, that both forms of TN and migraine rather often occur in a single patient. There's no rule that says you can't have both. Numbness in your extremities should be separately investigated as it can be a symptom of issues like MS or certain rare genetic disorders.
Thank you, I can’t believe it took me a year to find this site. It’s set I’ll be in to my GP tomorrow or Friday and she should help get to a neurologist again.
There is also a good interactions checker on drugs.com. One of the things on my to-do list is to find an authoritative SYMPTOM checker to assist patients in preliminary diagnosis and help them focus their interactions with doctors.
Thanks for the reminder on this, Makebelieve...
Regards, Red
itwouldntbemakebelieve said:
I was told by one of my docs that Gabipentin can cause swelling and numbness in my legs, so I would look into that there is also this handy tool i found online so that my mom could calm down about all the different meds I was taking at once. http://www.rxlist.com/drug-interaction-checker.htm it lets you check if any drugs you are taking could interact with each other. I do think the limb tingling should be talked about with a doctor, but first you have to have a doc that will listen, I'm hoping you can find a good one soon.
As for explaining pain, I made a visual chart, you might want to look into doing something similar. I took a photo of my face, and I put it in Microsoft paint and I drew on the areas that hurt, different colors for different pains, I will attach it if I can figure out how. I plan on taking it to my new doc next month, and it has helped my friends and family understand me better.
Ice packs behind my ear on the bad side is the only thing that has really helped me, beyond medication. Some people find heat works, most can do hot or cold, and the other makes them worse.
