I wish I wasn’t here. Don’t get me wrong. I just wish I was spending more time out with my family. Turned down a festival with them yesterday and today. I have atypical trigeminal neuralgia. This is my second time around as I had it in 2006-2008.
This time, It came back after a cracked tooth repair in January. Right now, I am slowly getting a happy Tegretol level as well as everything else. I took 300 mg three times a day, up until today when I started Tegretol ER bid. Had those lovely twinges through my upper law and ear pain, but stuck it out. I also wear a Butrans pain patch 20 mcg/hr. I have to change it every 5 days when the normal time is every 7 days. I take amitriptylline 25mg at night and also 90 my of Cymbalta for Fibromyalgia and my newest depression.
I did not cry today, so far, from the depression. I lost my part time job as an OR nurse from this and will lose my main job as a hospice nurse as well. They already told me. No love there. I don’t think they have any idea what I am going through. They probably think I am faking as it came on so suddenly, except for the two month migraines headaches. I also cry for the girl I was last year who loved to roller skate and play loud music.
I still draw a pay check for another few weeks. HR said to apply for unemployment after I apply for short term disability. So I just applied for disability last week. 60% of my salary doesn’t cut it. My dream of being debt free this year is gone. And I just did the taxes last week…and I owe! Damn, this girl just can’t catch a break!
So, there is my story. I am usually a very funny person. Don’t take me too seriously. That would mean I am feeling better. And just to say it now, I’m sorry you all are here too. I hope, as a nurse, and fellow two time atypical trigeminal neuralgia sufferer, I can help you in some way.
I have two teenagers, and a husband who are very supportive and loving. I have two cats and the most loving, and house protective German shepherd you ever saw. Just what I need is one more loud bark because someone drove past the house. Aaahahah!
Peace to you all friends…
I am so sorry that your employers are so unsympathetic. That makes me mad. Don’t let this Tn take away your dreams of getting out of debt or being the fun person you are. We need to stay hopeful and positive or the stress and depression will trigger more pain. One day at a time. ((((HUGS))))))
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Hi! You sound like a thoroughly lovely person and you're a cat lover so hey, you must have a huge heart!! Try to make it through tomorrow without crying and then try for the next. You're still the same girl, just a little dented. ♥♥♥
I was on a weekend commitment program where I was allowed 3 sick call outs a year. Two alone were from this year. One from an allergic reaction to the OR scrubs in Jan, and one for a nasty migraine in Feb. Then the Sunday call out for TM. They wrote a performance improvement plan and said if I called out I would not have my job. Before they gave it to me, I was a little loud and got pissed off with my boss. I think it was the headache talking. So that’s why they had no sympathy for me.
Kc Dancer I had Lidoderm patches and did just that. How did you know that I had a bad nerve on my lower jaw this morning?
I’m sorry you are here, but you’re in good company. It’s comforting to have a place to go where people understand what you’re going through.
I have a science degree with a minor in prenursing. I put college on hold to go back to work so that we could be more financially stable. In March 2011 I had my youngest and planned to stay home with him for a year then go back to work until he started school in August 2016. At that time I wanted to go back to school to become a microbiologist.
I was diagnosed on February 14th, 2012 (talked about an awful Valentine’s Day; I went to three different doctors that day). It’s been an exhausting 2+ years.
I was in management, so I can honestly understand why your job is being the way they are. They have a bottom line and a business to run (healthcare is big business). It doesn’t change how it feels when you’re going through this disease and they have no compassion for you. I wish it could be different. This is my very fear of returning to work as I feel it wouldn’t take long to be terminated.
I have 10-30 attacks a day, so suffice to say my TN is not well controlled. I think I could manage a days work with 0-5 attacks. I am advocating for SSA here to add Trigeminal Neuralgia to their blue book of disabilities.
I have to care for my toddler, which has proven difficult at times. I miss out of things that I so want to take part in. I plan my days around my TN.
Thank you sharing your story with us and we are here for you.
I.am glad to have found you all.