In the wee hours of this morning I found this transcript when I was having a cruddy time with sleep. I’m sharing this article because my neuro and my GP think my TN my come from my immune system going after my nerves. I was refered to a Rheumatologist who is I suspect did not care about this or believe it and I was only offered an appointment that was a year and half out (of course it could have been this rheumatologist was just in demand too much because they are the only one in the area). Then I finally saw a this type of doctor who did not know anything on tn, and then just said fibromyalgia and that was it. No other appointment follow blah blah blah. I did ask the later rheumy if there any ways or types of lupus that target mostly the nervous system his answer some not really. So I doubted my self and my neuro’s.
What lead me to believe my tn could have been lead by an autoimmune disease was my family history and I have a mystery fever at lest once a week every month. There is not just one or two family members with an auto immune disease but at 7 and all are close related; both parents, a sister, two aunts; and both grandmothers. Any hoots, I saw this transcript and plan to research this more in the next few weeks, but I thought I would share in case anyone else is intersted. This is just a transcript of a web chat with people asking a neurologist asking how lupus can affect the body with the nervous system. I found some of the questions to be very interesting.