Well, saw my neuro this morning…as I’ve been having breakthrough pain (2 weeks now) he gave me a prescription of Neurontin ( we had discussed this before) not pleased to have to add another med ( currently on 1600mg Tegretol) but I know I have too for the short term at least to try and get this pain under control.
I’ve had lots of side effects from the Tegretol since last year.
We discussed MVD at my request, he didn’t think I would be a candidate based on the fact that my TN is bilateral. ( pre meds it starts on right side electric shock like pain with triggers and then on meds my breakthrough pain occurs on left side and is more like ice pick in my ear along with constant boring pain in my teeth and gums/jaw)
He did say that he would refer me to neuro surgeon to get his opinion and that I shouldn’t be discouraged as he has had patients he has referred whom he thought wouldn’t be candidates and in fact the neuro surgeon in fact did perform surgery.
I also went to lab and had routine blood work taken due to high dose of Tegretol, last time was in May.
I have a follow up appt to see my neuro Dec.12th.
Tomorrow I am off to hospital to have VNG/ENG test to find out if dizziness and unbalance that I’ve had since November is an inner ear problem OR a side effect of the Tegretol. This is my last ear related test.
My ENT thinks I had BPPV and am just healing from that, my GP and Neuro think it’s from the Tegretol.
So, that’s where I’m at. Off to catch a nap…(( hugs )) to all. Mimi