Hi everyone, Hope everyone is having a good pain day. I just recently started to having tingling in the bottom of feet and on the palms of my hands. I also developed the feeling like I am drunk, spacey, and the head is swirling around. My neurologist is a giant jack$@# and is no help. Could it be the neurontin I am on. I only take 600 mgs 3x a day but have been taking it for almost 2 years. I don’t understand. The only solution I was given was cut the dosage in half. I am dumbfounded.
that happened to me just the other day…do you have a rash anywhere?
Hi Jessy,
My neuro and surgeon said that I should be feeling drunk on the neurontin (3600 mg) and the trileptal (450 mg) I am taking. And I know one can have side effects from medicines even after taking them for some period of time because that has happened to me with more than one kind of medicine. Your neuro does not sound like he is very interested in your case. I think he should have offered you another medicine to replace the neurontin if you are still having pain. Years ago when I didn’t have a lot of pain and during the times I got better, my neuro told me to step back on the medicine a small amount at a time to see if my pain would increase and then to stop cutting back if it did increase.
Liz
I have started getting tingling in ALL of my fingers about 2 weeks ago…I have had tingling in my head on and off for about the last 6 months thou…dont know what the causes are cuz doc dont give me any answers
If I don’t eat before I take tegretol I feel like I drank I 6pack of beer. Knowing how hard it is to eat something I have been living off of snack pack puddings. I have them at work so I can eat something before I take my pills. Also mott’s applesauce snack packs are good.
Hey if it’s possible, change your Neurologist ASAP. I changed mine and it meant everything. I’m so sorry to hear your still having difficulty
I am now taking neurtin along with tegretol, still felling drunk but am getting better. I am able to eat a little better. Which is great! It still bothers me to talk alot and my head bothers me when I sleep at night on the pillow? Weird!
Andy Rackerby said:
Hey if it’s possible, change your Neurologist ASAP. I changed mine and it meant everything. I’m so sorry to hear your still having difficulty
my preference is to send you a private message, however we are not “friends” and i want this to reach you quickly.
ask your neurologist for a visual evoked potential test. this test rules out MS. it is simple and painless. you stare at a blinking screen for five minutes with electrodes taped to your scalp.
no cause for alarm, but given your abrupt symptoms and age, it is worth ruling out. it is cheaper and faster than an MRI (though it might not be a bad idea to have your brain imaged).
if your neurologist will not agree, ask another doctor or neurologist who will.
the researcher
I will ask about that test, thanks. You don’t think it’s from the meds? I am still having calf pain, my neuro said that can be from low sodium count caused from the tegretol. I have had blood work done and am waiting to hear. I have leg and back/nerve pain everyday, but the calf pain feels like my calves are going to explode sometimes! thanks again for suggesting the test. I appreciate it. 
the researcher said:
my preference is to send you a private message, however we are not “friends” and i want this to reach you quickly.
ask your neurologist for a visual evoked potential test. this test rules out MS. it is simple and painless. you stare at a blinking screen for five minutes with electrodes taped to your scalp.
no cause for alarm, but given your abrupt symptoms and age, it is worth ruling out. it is cheaper and faster than an MRI (though it might not be a bad idea to have your brain imaged).
if your neurologist will not agree, ask another doctor or neurologist who will.
the researcher
my message was intended to Jessy. sorry for the confusion. could someone who is friends with her please cut and paste my message and send it to her privately? this way she will get it.
thanks.
the researcher
Kristin Forrester said:
I will ask about that test, thanks. You don’t think it’s from the meds? I am still having calf pain, my neuro said that can be from low sodium count caused from the tegretol. I have had blood work done and am waiting to hear. I have leg and back/nerve pain everyday, but the calf pain feels like my calves are going to explode sometimes! thanks again for suggesting the test. I appreciate it.
the researcher said:my preference is to send you a private message, however we are not “friends” and i want this to reach you quickly.
ask your neurologist for a visual evoked potential test. this test rules out MS. it is simple and painless. you stare at a blinking screen for five minutes with electrodes taped to your scalp.
no cause for alarm, but given your abrupt symptoms and age, it is worth ruling out. it is cheaper and faster than an MRI (though it might not be a bad idea to have your brain imaged).
if your neurologist will not agree, ask another doctor or neurologist who will.
the researcher
Thanks the researcher. I have been offline a bit, I went in on Wednesday for my second MVD. He cut my nervus intermdus and went to my 5, 9, 10 cranial. I had compressions over all the nerves that he was able to section off and praying that gives me relief. I did have two more MRI’s for the tingling and drunk feeling. One MRI said it was a pituitary tumor and my neurosurgeon said it looked more like a cyst. Right now I am focused on the long road to recovery. Thanks to everyone for their recommendations its greatly appreciated. hugs
jessy,
welcome back and congratulations on making it through your second MVD. did the neurosurgeon find compressions on your 5th nerve again? if so, was it a vessel, vein or both? this is important to know.
the nervus intermedius is part of your 7th nerve. it mediates sensation inside your ear. the 9th and 10th nerve mediate swallowing, gag reflex, and speech function. did you have throat or neck pain, pain on swallowing, trouble swallowing, any speech problems?
pituitary cysts are usually found by chance (when scanning for other things) and are benign. even if it were a tumor, it should not be causing the symptoms you are describing.
lastly, did you have a thin slice MRI/MRA and did it show a compression at the time of imaging? i am researching a correlation between age of patient and sensitivity of MRI imaging.
when you feel well, respond at your leisure. no rush. all the best for a speedy recovery.
the researcher
Hi Jessy,
How are you doing?
Jessy said:
Thanks the researcher. I have been offline a bit, I went in on Wednesday for my second MVD. He cut my nervus intermdus and went to my 5, 9, 10 cranial. I had compressions over all the nerves that he was able to section off and praying that gives me relief. I did have two more MRI’s for the tingling and drunk feeling. One MRI said it was a pituitary tumor and my neurosurgeon said it looked more like a cyst. Right now I am focused on the long road to recovery. Thanks to everyone for their recommendations its greatly appreciated. hugs
I am doing pretty well. Still battling some pain that is on and off. Overall, the MVD went well and now just waiting to see how much improvement I have. I am still having some problems swallowing certain things like breads but nothing serious. The neurosurgeon said with the artery weaving, it was pretty much braided through all my cranial nerves, he said it could be awhile before total relief. His findings explain why when I swallowed I was being shocked on the side of my face and the inner ear pain I was constantly having. I am hopeful for relief, and I know that it isn’t a cure-all so all I can do is hope for better days 