I was diagnosed with TN 3 months ago and was put on Tegritol right away. I was on 400 mg until a few weeks ago, but the pain returned so I have been increasing it very slowly. Ever since I started on Tegritol I would feel slight nausea when I woke up (not pregnant) but it would quickly go away. I am up to 700 mg and feel nausea every day and last night I was vomitting. The nausea comes and goes. Has anyone else experienced this?
I had that yesterday!!! Couldn't sit up without wanting to vomit. Did slightly vomit once. That was going from 3x 200mg a day up to 4x 200mg a day. It's better today but today I feel slightly drunk, that tipsy feeling between being merry and being hammered. Which I think is better than that nausea so hopefully my body is adjusting because the pain is a lot better!
That is exactly how I feel today too! Tipsy is much better than drowsy! Glad to hear your pain is better. I think I have atypical because before tegritol the burning in my ear was 24/7. Now with Tegritol it seems to start in the late afternoon and goes away when I fall asleep. So this increase has not improved that but it has improved the electrical type pain in the rest of my face.
Yes exactly! You sound just like me! *does a little dance of joy, not for us being in pain but because there is someone else like me!*
I had the temple or ear or jaw, alternating, one (or two) of those would be going 24/7. And then the "spikes" that I had in the front of my face in my cheek were reducing me to tears unable to do anything while having them. Tegretol has turned the spikes into something I can feel and is niggly but okay. The other stuff I don't really notice much anymore. Other than the fact Tegretol causes headache, though I know if it's on both sides it's the Tegretol, one side it's the TN.
I have nausea as well at times. Especially when the pain is kicking. Sometimes it just comes out of the blue. I am on Neurontin 300 mg twice a day at this point. My body is just getting used to it so I'm not going up again anytime soon. I don't know if it's part of the TN or just our bodies. This is all such a pain. Hope everyone is having a good day.
Sometimes I think, oh I can't have TN it has to be something else, but when so many people feel the same way it certainly confirms it. I am having pains on the other side now. They aren't as often though but discouraging.
Hugs,
Collette
Porcelina said:
Yes exactly! You sound just like me! *does a little dance of joy, not for us being in pain but because there is someone else like me!*
I had the temple or ear or jaw, alternating, one (or two) of those would be going 24/7. And then the "spikes" that I had in the front of my face in my cheek were reducing me to tears unable to do anything while having them. Tegretol has turned the spikes into something I can feel and is niggly but okay. The other stuff I don't really notice much anymore. Other than the fact Tegretol causes headache, though I know if it's on both sides it's the Tegretol, one side it's the TN.
You know that is probably why the nausea happens in the morning, because as soon as I wake up and open my eyes the TN twinges start too. I found I had huge headaches with Neurontin so I am glad it works for other people because I have read it does not have as bad side effects as Tegritol. I love being able to share with people that are going thru this . . . it answers more questions than seeing a doctor. I just wish the doctors had more answers to cure and prevent this.
typqueen said:
I have nausea as well at times. Especially when the pain is kicking. Sometimes it just comes out of the blue. I am on Neurontin 300 mg twice a day at this point. My body is just getting used to it so I'm not going up again anytime soon. I don't know if it's part of the TN or just our bodies. This is all such a pain. Hope everyone is having a good day.
Agreed. I'm hoping the Neurontin works. This is only my second week on it. It is good to be able to share our symptoms and pains on here. It helps so much. I did hear the Tegretol can be nasty. I know that is what the neurologist will use if the Neurontin doesn't work for me. I'm hoping it does. How long have you had TN Collette?
It started in mid Dec 2011 with a sore tooth, then a sore/achy face, but the attacks started on Dec 28, 2011. I would have the shooting/electric type attacks so many times throughout the day (cannot count) and had the burning in my ear pain 24/7. I was lucky as I went to the doctor after a few days of pain and was diagnosed right away. The tegritol took about 10 days to start working. I could not sleep or even lie down the entire time because my head felt like it would explode from my ear. I have 3 teenagers and watching the disappointment that mommy isn't better when they arrive home from school is so hard to see. I have great kids and could not imagine going thru this with kids that aren't. I have co-workers bring casseroles/fruit and flowers every now and then and my entire book club brought meals so I have a great support system. My husband can't get very much work locally so he takes care of us (as best as he can). I am on sick leave from work and have the option for long term disability if needed which is a relief.
After 2 weeks of TN, I showed signs of other health concerns and doctors are still trying to pinpoint what else is wrong with me. I will be having a lymph node removed and biopsied and I am waiting for full body CT scan results. My sister died at 39 from cancer, so I try to be positive but it is haunting me.
How long have you had it?
typqueen said:
Agreed. I'm hoping the Neurontin works. This is only my second week on it. It is good to be able to share our symptoms and pains on here. It helps so much. I did hear the Tegretol can be nasty. I know that is what the neurologist will use if the Neurontin doesn't work for me. I'm hoping it does. How long have you had TN Collette?
Oh my , I'm so sorry. You have a lot on your plate. I will keep you in my prayers. Glad the Tegretol has helped. It is hard when you have the kids. I have one grown daughter, who is 24, and she's a huge help to me. My husband is very supportive, but you're right, it's hard for them to see you not getting better. I keep going to the doctor, getting meds adjusted, etc., and keep staying status quo. Hopefully one day it will really settle down and the meds will help and I'll feel human again. I hope your results are good Collette. Keep us posted.
We've had the nausea. We've had the drunkenness. Do you have the headache and muscle cramps now? That's what day 3 of nasty side effects is bringing me. Headache so bad I hardly slept. Then muscle cramps when awake.
It's like the 12 days of Christmas! Woohoo! :P
Ugh.....did you get the five golden rings???
Did any of you find a relief for the nausea? I need help.