My name is Krissie by the way ļø Nice to meet you guys.
Nanooo48,
Iām so glad my words and experience are helping you. Honestly, Iām a little worried about you going back too if you canāt ease into it and itās a high stress job, but hopefully if you take as much time as you can and rest enough now, youāll be fine.
I never had liquid come from my ears but I was told that itās normal for some Craniosachral fluid to be swishing around, sort of outside where it normally would be. At least thatās what I understood from what my NSās nurse said after the surgery and from my continued (but diminishing in frequency and intensity) experience of hearing a pounding that is similar to how it would sound if I had water caught deep in that ear and I was hearing my heartbeat. It was far worse right after the surgery and will show up even now if I overdo it, and/or have a lot of pain on my left side (side which did not receive the MVD), or sometimes just randomly. The weird thing for me is that I never heard the pounding in the right ear (side which did receive the MVD). Iām really glad you went to the ER and am sadly not surprised that they treated it like nothing; Iām sure making you feel invalidated and possibly like you shouldnāt have gone. Such a******s sometimes. Hello people! Someoneās just been working on my brain; loss of hearing can be a side effect of this procedure, and now I have FLUID coming out of that ear! Could you please show a little concern or at least some compassion? Oy.
Oh, I also think I know what you mean about your brain feeling tight. First of all, after the surgery I could tell someone had been messing with my brain. I could physically feel my brain it seemed. I didnāt express it as, ātight,ā per se, but in retrospect that term wouldāve been just as accurate as any I was using to try to explain it to my (ex) boyfriend and sister. Now, my scar will feel tight as well sometimes too.
Nanooo, Iām worried about your work. On the other hand, I have to remember that I was, and am, still dealing with daily ATN on my left side, in addition to the surgical after affects, and of course, individuals are different. I ended up quitting my more stressful job because I simply couldnāt concentrate or focus like I could pre-op, nor did I have the energy I had. The energy really started coming back for me at about the 6 month mark, but Itās only now, almost exactly 1 year later that I feel more able to focus and to concentrate for longer periods of time again. My memory is alsoā¦different. I had to write things down before but theyād mostly stay in my head too. Now, I absolutely have to write things down. I guess my main message here is to be ready for some things to be different for you, possibly for longer than you expected. Then, if theyāre not, great! If they are, youāll know itās normal and for how long you might have to deal with whatever side effect. I wish someone had let me know.
Nanooo, I wish you the best of luck with everything in your recovery. Iām happy to be the reassuring voice that you need to hear. We all need that, whether weāre on this site or not, but ESPECIALLY if weāre on this site. Iām happy to answer any questions, based on my own experience, as you continue to heal. Good luck! You sound great!
Christy
PS Krissie, I just saw your name! Nice to meet you! You too Liligirl!!
Also, omg, the clicking. I totally forgot about the clicking! It was the strangest sensation because Iād hear it and then kinda feel it coming through my nose. I have awesome sinuses and it felt like it was air bubbles around my brain that escaped through my nose! I donāt know. Iām sure itās a little different for everyone whoās had this, but itās like nothing you can explain to anyone who hasnāt!