Been watching these videos over and over to give me courage..if this young girl can do it, I see no reason I cannot.....
I’ll chime in about Dr Casey- he is such a breath of fresh air! It felt so great to hear answers, and information that helped make sense of things. My local Neuro was great at prescribing meds, no other expertise in TN.
I agree that MVD really is the only option that gives us some real hope. It actually fixes the problem, and in the right hands, it can change our lives.
Meds for years and years leaves us in a painful fog, and as the years go by, the vessels are actually doing more damage to our nerves! Dr Casey told me that my nerve had turned grey, should be white! I’ve had TN for 5 years, meds for 3. That damage will not heal, and I’m crossing my fingers for a long term outcome.
I am cheering you both on!! My way of being brave was to be " Xena Warrior Princess!" And Dr Casey was fighting with me, his whole team was by my side.
You don’t know how strong you are until you are tested!! Good luck!