I’ve had Trigeminal Neuralgia (TN) for 10 years. Carbamazepine is no longer controlling the pain and my labs show that I’m at a topic level. Anyone else with an upcoming MVD, I’d love to have a buddy to walk through this process together.
Hello
Ed here. I will walk you through this tough time.
Plz feel free to connect. My MVD was April 2013.
Hang tough, everything gonna be all right !
Warmly
Eddie
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Thank you so much for the response Edster.
How are you holding up ?
My MVD is scheduled for Oct. On Gabapentin for past 4 1/2 months at 700mg four times a day.
Hi Ed! How long did you have TN? Were you on any meds, if so what were they and what dosage? Any complications after MVD? How long were you in hospital after surgery? Are you on any meds at the moment?
Hello
I apologize for the late response I have been struggling for the last few weeks: I have been living with TN for over 10 yrs. I tried MVD and Percutaneous Balloon Compression and nothing seems to help except Tegritol ( I take about 7oo mgs a day) My hospital stay was a tortuous ordeal marked by many complications. In short I was pain free for 6 months, then I believe I developed a reaction to the Teflon …However, no one believes me. In short, I have accepted my intractable pain and I try to live my life the best I can
I hope you had a great surgery please touch base I will be looking for your e-mail.
Warmly
~Eddie
Hi Edster,
Thank you for your response. When I took Tegretol (my 1st meds) after 3 weeks I broke out with a horrific hives, swollen cracked, bleeding lips. I had swollen feet and ended up in emerg. It took 1 1/2 months for me to return to work. In short I suffered with the reaction of taking Tegretol. So weighed my options and decided to go with MVD. Hopefully I will not have any reactions. I think I’ve suffered enough.
Will chat after procedure. Wish me luck!
Regards,
DA
Wow
Hang in there keep me posted
E