ive missed alot of stuff since i have been diagnosed or shall i rephrase "accepted my disorder"...i miss my friends ...my friends don't understand...i missed out a very important event yesterday cause of my pain...i just need to vent im sorry my friend text me the meanist thing ever tonight because i wasn't there and when i called her to explain how bad i was yesterday and how i had to up my pills she just kept attacking me saying i know your sick but if you could have just pulled your head out of your ass for 2 hrs to be there. lve been crying all night im just so fed up with this disease im so vunerable now ...im not guna say no one understnad becuz i do have a few angels in my life keeping me here my doggie my best friend, my parents my best girlfriend and all of you who have been so amazing!! I never knew who my heroes were until now YOU all are my heroes Such amazing wonderful people that i have grown to take comfort in seeing there posts to help I just wanted to say thankyou to all of you!!
please put in the search box here - and/or google : The Spoon Theory
Easily prints and explains to others so they can read for themselves that we have limits - and how it causes us anguish
If anyone gets too nasty= use it sparingly - explain to them that this didn't used to be called the suicide disease for nothing! It is the worst pain known to man....
I became a recluse in 2011 - after my wedding - I quit going dancing every weekend (I'm 50) ! I quit calling my friends, I felt I had nothing to contribute and nothing positive to say..... got on a low dose antidepressant that helped a bit and some things in my old life had to be replaced by things in my new life -- its hard - but you will learn more HERE than anywhere about this TN Hell Journey - it's blessings and it's terrors.... Look under the groups tab - and you can join a group for humor,, pet lovers, etc...
If your meds are not helping much - ask your doctor for some ASAP prescription lidocaine patches -- allowed me to get out and do more in life ! I wasn't able to work with my NEW college degree - but I volunteered on the good days... must keep moving forward......
Keep Posting!
thanku for sharing your personal experience kc you are such an inspiration to me have been here to help everyone from day 1 sooo inspiring i try to do as much as i can to help others on here to give them answers...no one will ever possibly understand i feel if i have to hand them a fact sheet they really don't give a shit to understand what im going through ....If people I thought were my friends can't take two seconds out of there day to google my disorder to understand me then screw them. I would do that for them i know i would i hate seeing that people are hurting or sad. I never took life for granted I lived it to its fullest at 31 and if i died tommarow i would be ok i feel older then i am. Ive always been different. strong and knew who i was til now ...not sure where its going to take me but i hope a better place.
You’re hurting so bad aren’t you. I can feel it as I’ve been there too. I also felt the same way, that my real friends should take the time t google my condition so that they would understand what I was going through. You find out your real friends with this condition, that’s for sure! Hang in there!
Sometimes when something like this disease happens, you find out who your true friends are. My opinion, cut out ANY negative people in your life...........cut them out. You don't need any more sadness or negativity than you already have to deal with with this dreaded disease. I am glad that you have a best friend who IS there for you. And yes, we are here for you too! ((((((((((HUGS)))))))))))
I am so sorry you had to go through that.
There is a piece written by Bek Oberin that is fantastic for your friend to read.
I use it a lot when my friends / coworkers give me a hard time.
Look for “A Letter to Normals from a Person With Chronic Pain”
There are adaptations, and modified versions out there, but it really is fab.
I know it is tough, your friends do not have a clue. It isn’t that you dont want to be there, its that you cannot.
Wishing you a pain free day.
Smash
Hello J…(trying to do this from my phone but keep messing up)…you have good angels to be with you…soon you’ll shed no tears for fallen angels. They live in the realm of ignorance. Perhaps some day they will rise out from there. Meanwhile bake an angel food cake and we’ll have a cup of english tea (lost of brits here) with you…WELCOME.
it's so hard when the people you love really don't understand the pain you live with. Please be the bigger person and forgive your friend, because she really doesn't understand. (although, yeah, she could have been a little less bitchy about it)
I agree, get her to read that "spoon" thing. It's an excellent way to explain things.
I'm so sorry you're having such a bad time right now...it will pass, even though it might not seem like it right now.
You are not alone. Remember that. *hugs*
~Mistee