I agree with the ladies above. The right meds can make alot of difference and annoyingly it can be a journey finding them for alot of us. Although i dont really suffer from triggers, when in pain i dont even want anyone near me and it can be hard and i resent myself in fact. I have a fiancee who is a diamond but i am very aware that being a dragon should be taken out on something else not him but as its hard to be social he gets the brunt of all my varying moods. AFter a recent caldwell luc operation then i know how u felt, i could not have anyone hug me with my face near them or kiss my cheek or sleep on that side at all and its bloody hard.
When the time comes and you are with someone they will surely know about the tn as it affects your life big time and some people are just lovely and they too have there own thing to deal with and constantly try to connect with you behind all your stress. They too just wanna be with a nice person and having tn does not doom everything though sometimes it feels that way. Just gotta find other ways to connect like perhaps a masage or holding hands or snuggling (not up to the face!).
Jobs..the job thing is a worry for many. I am a trained professional hairdresser and i work with advanced colouring and cutting etc. I was used to being in a busy salon dealing with the fussiest clients etc and i loved my job. Now tegretol has butchered my brain and i feel frustrated.
If there is one thing i have learnt from tn its that you have to be able to adapt your life as much as you can and think outside the box. Initially i have been thinknig, oh my god i can NEVER do my job again, i cant even remeber how to cut hair or anything i just draw a blank, all those years of experience, but then i thought, what is best for ME.
I need less stress, something that does not take masses of concentration that most people could do, then i thought of it, i will be a maid. Many people criticised but if they are stuck up that is there problem. I plan when i feel a little less exhausted to go for a job in a hotel as a maid..it will pay the bills be less stress, help me to use the rest of my body more as ive gotten rather weak and it just seems viable. I stopped feeling sorry about WANTING to work in my old job and just thought, oh well, such is life, any job is ok if it pays my bills and gets that stress off my mind.
Lastly you are not whining, being in pain and stuck at home allows for us to sit there and think t6he worst while we feel our worst, it happens to us all hun and thats ok, just gotta rewmind yourself what you life is and not what it seems or how you think it will be. You have the control not the tn, even if its only control of somethings you make certain decisions etc.
Dont beat yourself up with your unproven worries!!!Having tn doesnt make you a bad mother or an undesireable partner. If someone else was writing this post i am sure you would say the exact same thing to them. You can do this just take each day at a time when you feel its all too much and you can 'whine' here anytime you want because we all read and care about your feelings :) sorry for LOOOONG message