Rejoice and celebrate the season of Spring. Enjoy the colors and the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!
Welcome New Members!
Thanks for signing! This site is built for the patient, spouses, parents, siblings and friends. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.
Help yourself. Explore our community, write about your experience, ask the community. Reach out to the community anytime you need support. Have fun! Again, our warmest welcome to you.
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IN THIS ISSUE
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Living With GPN COMMUNITY HIGHLIGHTS
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
Kudos to Our Ben's Friends Facebook Team
Life With Crohn's is Coming Soon
Ben's Friends Joins the AVM TAAF Walk 2014
Living With GPN COMMUNITY HIGHLIGHTS
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Featured Content: MVD or Rhizotomy/Sectioning
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Any thoughts on MVD or Rhizotomy/Sectioning and how it treats GPN? Leave a comment on tjone90's discussion post to help out!
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Featured Member: Vicdoc
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Starting off his story on what happened on 2006, Vicdoc describes what he feels and how it affected him. By sharing this and what he knows with our community, he has been a great part of the socialization inside LivingWithGPN.org whereas he often contributes on what he can share on members' discussion posts or more. Vicdoc has certainly shown us that even certain diseases can't keep us apart from helping others. Check out his profile for more of him and his story. You can also leave a comment on his Comment Wall or perhaps message him for a nice chat!
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Picture of the Month
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Need some inspiration in your journey? Check out this photo mary shared for something to ponder on while your moving forwards in life.
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Community Stat:
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Number of Members as of May 1, 2014 : 384
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
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Kudos to Our Ben's Friends Facebook Team
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Have you seen our Facebook pages lately? Thanks to the FB team who have given our Facebook pages a new and improved look: Dancermom and Debra (AVM), Amanda (Addison's), Jane (PsA), Mandy (Chiari), Mads, Nel, and David (Erythromelalgia), and above all, our talented and dedicated Facebook Manager, Stephen Cox (PSC and Crohn's).
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Life With Crohn's is Coming Soon
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We are pleased to announce the launch of our Life With Crohn's community - a community dedicated to patients affected by Crohn's- a chronic condition that causes inflammation of the gastrointestinal tract. If you know someone who has Crohn’s Disease, please invite them to join our community and spread the word about Crohn’s.
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Ben's Friends Joins the AVM TAAF Walk 2014
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Ben's Friends Partners (Eric, Scott and Haley) along with several AVM Survivors members joined the 9th AVM-TAAF Walk2014 on May 4, 2014 in San Francisco. Over 500 participants gathered to raise awareness and funds to support TAAF's research, educational outreach, and programs. The Aneurysm and AVM Foundation (TAAF) is a 501c3 nonprofit dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other vascular malformations of the brain.