Hi all, i was just wondering if anybody knows why some of get Type 2 Atypical after we have had Type 1, What happens to cause us to get the Type 2, and not just stay with Type 1. I had an MVD done last August, My TN1 pain started again within a week or two , but by Christmas it has changed to TN2, When i saw my Neurosurgeon, he said that i now had Type 2 Atypical. I still get the occasional zapping from TN 1, so can not say that has gone completley.
I am just curious to know, if any one has any information it would be great to hear there opinion.
This has also happened to me Nita, I thought TN2 was due to an injury somewhere along the nerve path rather then at the brain stem as in TN1. I once read that after many years TN1 may injure the nerve so it turns into TN2, but like you my TN2 happened very quickly after TN1.
My own theory is I think my nerve was injured and this caused a trigger of TN1 now this has settled down and I am left with TN2. This is just guess work on my part. So far my TN1 has not come back.
Dearest Nita, THANK YOU for posting this question...This is EXACTLY what happened to me also!!! I had Type I TN for approx. 3 years, then finally had a MVD surgery last September. My pain also return within a couple of weeks after surgery & is now CONSTANT & affects my eye, vision & other "new" fun side effects that I did NOT have before surgery! So far, none of the anti-seizure meds have helped lower my pain level at all which is MUCH higher than even before MVD surgery! My neuro. thinks mine is Type II TN now also...& tells me there really isn't anything much that can be done for Type II TN! My doctors just don't seem to understand how horrific the constant daily pain is...or I'm sure they would give me something in addition to anti-seizure meds for it! SO FRUSTRATING...thanks again for asking the question - I hope there are many responses to it!!! Take care! :)
Dearest Nita, THANK YOU for posting this question...This is EXACTLY what happened to me also!!! I had Type I TN for approx. 3 years, then finally had a MVD surgery last September. My pain also return within a couple of weeks after surgery & is now CONSTANT & affects my eye, vision & other "new" fun side effects that I did NOT have before surgery! So far, none of the anti-seizure meds have helped lower my pain level at all which is MUCH higher than even before MVD surgery! My neuro. thinks mine is Type II TN now also...& tells me there really isn't anything much that can be done for Type II TN! My doctors just don't seem to understand how horrific the constant daily pain is...or I'm sure they would give me something in addition to anti-seizure meds for it! SO FRUSTRATING...thanks again for asking the question - I hope there are many responses to it!!! Take care! :)
Hi . I have been waiting patiently to hear from the Neuro surgeon as he said he would get in touchwith my my GP. I had an appt to see my GP today about what the N/Surgeon said.
OH Boy , i am not happy, I came out from the GP's crying like a baby, He says i should go see someone to see about what is happening with my Brain, as he belives there is nothing wrong with my face, and he has never in his life heard of TN2 or Atypical TN.
This is someone who is supposed to be a Neurosurgeon, (Not the same one who did my surgery, as he the one who did my surgery died the week after he operated on me.)
So this new person who i do not know now has me down as a basket case, Brilliant just what i needed.!!!!!!!!!!!!!!!!!!!
Any ideas Red, as they would be greatly appreciated.