It's not day to day pain management that worries me

it's the constant fear of tomorrow.

My mother was diagnosed with TN 8 years ago. Despite a failed MVD, her pain has been mostly manageable by medication. However, we live in Africa and if her TN is not controlled by medication there is no way we can travel to seek proper care.

I can't breathe when she gets the tiniest attack. I remember the days she had the horrible pain attacks that lasted for hours and days and nothing could be done but an MVD while she was transiting in Cairo.

She had two mild attacks last night. We're too scared to make any more changes to her Tegretol dose. Please pray that it doesn't get any worse than this.

I'll be praying and thinking of you and your Mom, Asmara. I know my kids' feel really anxious when they see me in pain, too. They feel very helpless. You're a very good daughter. Hugs to you and your Mom.

~ Vicki

I am so sorry. I understand that fear. My husband and I talk about it often. We will be praying for you.


I am praying for you today. I hope things are better.