it's the constant fear of tomorrow.
My mother was diagnosed with TN 8 years ago. Despite a failed MVD, her pain has been mostly manageable by medication. However, we live in Africa and if her TN is not controlled by medication there is no way we can travel to seek proper care.
I can't breathe when she gets the tiniest attack. I remember the days she had the horrible pain attacks that lasted for hours and days and nothing could be done but an MVD while she was transiting in Cairo.
She had two mild attacks last night. We're too scared to make any more changes to her Tegretol dose. Please pray that it doesn't get any worse than this.