It's been about a year since I have been here. Had TN for 2 years had mvd last March and Dec. started noticing some pain coming back. Went to neurologist and now I am up to 800 mg of Tegretol. That is why I had the surgery in the first place the pain was so bad and I hated the way the meds made me feel. The pain has not progressed to the point that it was but I have had some pretty bad days. Some days I just feel the the whole nerve is swollen for lack of better explanation. Just looking for some thoughts from others who may have gone thru something similar. I have tried to lower the dose of meds a couple times not a good idea. Also, not real excited about running for another surgery. Any thoughts would be appreciated.
Your story is mine: Try, and find the meds that work: Often it will be a combination. As for myself, I would never go through with a second MVD because it took about a year for me to recovery. It was the hardest thing I ever had to go through. Try working through the side effects to achieve the benefits and don't forget the heating/ice pads.Please hang in there and seek out other interventions ( i.e., balloon compression,and gamma). There is relief you just have to find what works for your body
I would have to say avoid the balloon compression. The risk on anesthesia dolorosa is very real and there is literally nothing they can do to help it. I’m 24 and made the mistake of having the balloon compression after my MVD failed And that was one of the side effects. I can never take that back and will have the AD for the rest of my life. Just a thought…