Its been a tough day

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1

I just got on antibiotics for a sinus cold and it has really set off my facial pain. stly have ATN pain with periodic jabs of TN sticking its nose in. It is getting to the point again that my face is often set with pain which I think people misinterpret as irritation, at least thats what my kids think. It makes it difficult to interact normally and it can affect the way people relate to you and how much you are able to relate to other people.

The TMJ doctor wants me to finish my TMJ treatment before I consider having the TN treated with surgery on the right side but I don’t have much hope that he will be able to take all of my pain away. It has been so long without pain that I am weary of it.

I had a year and a half respite after my first MVD which was a miracle. When the pain came back and the Rhyzotomy failed and triggered my TMJI had the MVD again. It took care of all of the pain eccept for the spot right beside my nose and the roof of my mouth. The surgeon suspects there must be some kind of compression further down the nerve but they have as yet to come up with a solution for me. My left side is continuosly getting worse.

I would like to wait until after our summer trip accross the country to get the left MVD done if I can. That would also be a year of recovery from my last MVD. I hope I can make it, and enjoy my time despite the pain. If it gets bad enough I will see if they can do me sooner.

I am glad I found this forum to voice my hopes and fears. I hate to be a constant complainer. When people ask me how I am they must get tired of my saying I am in pain and if I say that I am better or play it down they think it is OK now. I usually say OK, but I rate myself from nonfunctional, to bad, OK, good and great. Today I would say the better part of it I was nonfuncional and flying off the handle at the littlest things which is not my normal personality at all. I didn’ recognize myself. This beast is truning me into someone I dont know.

hopefully, tomorrow will be a better day and I will be a better person. Idont’ want to scare my kids or make them worried for me. I am supposed to be strong.

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I hope you can enjoy your vacation. And maybe tomorrow and the following days will be better. I am still having problems with eating and talking and this increase started after about 2 weeks of almost pain free. But I don’t have young children having to watch me go thru this. I am thankful for that. Keep us posted. Liz K.

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thanks Maeve, just having someone listen helps, I am ususally able to deal with it but every once in a while I get overwhelmed. I haven’t done the pain level thing in a while but maybe I will try it again. Thanks again.

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thanks Liz for your post, I know you understand what I am going through. I was able to make it through my trip to Alaska this summer and came back with wonderful memories despite the pain. It will be trickier this time because I will be driving but at least I will have Doug there to take over. Today is only minutely better but the majority of my days have been fairly good since my surgery in August so I am better than i was. I really appreciate having people who understand and care, thanks.