Is it ok to drastically increase her tegretol dose? What do you usually do? And please don’t say find a doctor. My mother is in intolerable pain
We live in Africa and all the neurologists web been to over here have ever seen a TN case. We just need her to stabilize so that we can leave the country. I seriously need help
The side effects are too severe to increase dramatically. I have been told that you should never go up by more than 100mg every 3-4 days. That is not what I am telling you to do, just what I was advised. I am so sorry for your mother.
Is there a hospice you can go to?
Asmara, where in Africa do you live? There are neurologists in Capetown, if you can get there. But I echo Jackie's advice: do NOT drastically increase your mother's medication without a doctor's consultation. You could put her into seizures by tapering up too fast.
Regards, Red
Asmara, You have to be carefull with Tegretol. That was the drug I was on for 8 years. When I would have a flare up my doctor insisted on a blood test to see the Tegretol level before he would increase the dose.
Connie
Thanks everybody.