I don't want to give anyone any ideas for a disease called the "suicide disease" but I am looking for accurate statistics, for my own curiosity. all I can find is this phrase "for those who live with Trigeminal Neuralgia for more than 3 years about half commit suicide."
Can that be accurate? Is it just a phrase that keeps being used all over the internet? because I can't find any basis for it statistically. I can't find ANY statistical information on suicide rate. If the moderators think that this is not a sutable (sp) topic I will not be offended if they take it off. I was only diagnosed 3 months ago and trileptal sometimes impairs my judgement
I have heard it referred to as that. I think I can relate. When the pain is that bad and ppl don't take you serious, or don't diagnose you correct, you start to feel like there is no relief to what you live with everyday. It took 3 yrs for me to find an answer. I did get some relief with being diagnosed (so I can stop letting ppl make me think its all in my head), but the pain is still there. It is unbearable at times. I would like to know an actual statistic also.
I am also interested to know where these kind of phrases originate. After all, the 'wiki' type definitions are what we read when we are diagnosed and what we ask our friends and relatives to read when trying to explain our condition. First impressions stick with a person, so why not challenge the accuracy of the stats.
Sorry about the tittle but all of you understand the influence on grammar and spelling on anticonvulsants "I would like accurate statistics..." don't know where that "to" came from
Look up tic douloureux - original name = goes way back many many decades
I believe the nickname came before most of the newest treatments
BUT it still currently happens I saw a doctor on the web - a video discussing a couple of them--
not all suicides are listed as such - accidental overdose on pain meds perhaps for example.
Like I've said before -- if this hurts worse than cutting my leg off with a chainsaw - the worst pain known to man
it's pretty freakin bad.
Even though I'm in 98% remission for now since MVD -- The depression alone could have been tipped over the edge at many points. We have to keep walking this journey with hope in our hearts for ourselves and others.
Thanks I never thought of the "accidental overdose" situation. Though I have heard of people with TN hoarding meds just in case. I wish I could think right.
Hi, I hunk I can relate. I have this disease for 8 years. Initially, I did not respond well to the medication and couldn’t accept my fate and sank into depression. With no support from family and friends, dark thoughts hovered over me. If not for the caring doctor, I would have ended my life. We do not know how many who suffer from this disease cannot go on like this, as the intense pain can drive one crazy. Therefore it is important that we know we are not alone. With cyber love and support, we can hang on until we get relief .
Mine was a lil different. I was up every night in unbelievable pain. Before I was diagnosed I didn't know what it was that was slowly killing me. I took every pain med a dr. or ER had given me to try to stop the pain. I took everything I had. ( Now knowing that pain meds don't work on this type of disease.) I took sleeping pills to knock myself out, that also didn't work, so finally I started shooting vodka. Not a good mixture. So that is were I can see suicide also taking place. Totally by your own hand, but just trying to rid yourself of the pain.
The pain was so terrible that you would do anything to rid it. It was like a piece of flesh in your cheek being mauled by a beast and pulled , and the nerve pain started to shoot out in all directions.This happened whenever you opened your mouth to talk or to take a bite of food. Although it lasted a couple of minutes in each attack, it was enough to drive you crazy. At times, it was so bad that even a slight brushing over the face triggered the pain. Natural element like wind and water became your enemies. Family and friends couldn’t imagine the kind of pain , and as you had no intention to explain clearly due to the pain, thus didn’t express support. I went from doctors to doctors , all alone, in search for a diagnosis and cure. Six months without any relief was enough to push you over the cliff. Survival instinct lives with us, we do not end our lives that easily, but we will do crazy things like popping substances into our mouth with one thought in our mind, that is : no big deal if we don’t wake up!
Sometimes I feel like taking the entire bottle of pills to make the pain stop! But thank God, I know better than that. I believe that's what has happened to many people in the past who did not know how to handle the pain. I'm still in the process of finding the right amount and the correct meds. Last night was the first night in a couple of months that the pain did not start after I took the medication, and I was able to sleep on a reclined position on my bed. I woke up every couple of hours to check for the pain, because I'm so afraid of it coming back like it does every night.
I know in my last two attacks, which I though were tooth related. I took the pain meds until I started vomiting. So I guess it would be easy to keep taking stuff to try and stop the pain.
One day I also had such a bad toothache, way before TN started, that I took so much Alieve, that when I peed it started looking red like blood. Then I read the side effects and I got so scared, I started praying.
I hear you on the "I wish I could think right:\" so frustrating...
tkal said:
Thanks I never thought of the "accidental overdose" situation. Though I have heard of people with TN hoarding meds just in case. I wish I could think right.
Prayer is always a good option first or last resort...
Mitzi said:
One day I also had such a bad toothache, way before TN started, that I took so much Alieve, that when I peed it started looking red like blood. Then I read the side effects and I got so scared, I started praying.
I seem to never stop praying. Mostly great full now. I want to support you in your journey. I’m in year 12. I use a topical ketamine,gabapentin, bupificaine, flexeril. Nice crime to apply directly and works in minutes. Big hug, Julz
Imagine how it was when they told patients it was psychological and they never got adequate care, if any.
However I too would appreciate knowing what the accurate statistics are. Maybe the tna.org? Where have you looked?