First of all, Happy New Year to you all, hope you and your families had a very enjoyable festive season over the Christmas holidays.
I've not been on hear for some months as I just could not face anything else to do with TN, not since my Maxiofacial appointment, and being told my ATN is all Psychological.
No help or support from the maxiofacial doctor at all, he said he could not help me as I don't fit the norm for the stereotypical common Trigeminal Neuralgia (type 1) patient.
I did not know of his Psychological diagnosis, not until I requested a copy of his letter that went to my GP. I knew the appointment did not go very well, the Maxiofacial doctor was not concerned at all regarding my symptoms, at one point he even gave a little chuckle.
He said he has never known a patient to suffer my symptoms and said it was extremely rare, he constantly smiled and giggled all through the consultation and basically told me the symptoms I should be suffering from, and because I didn't fit the norm he said he could not help me.
I made a formal complaint regarding the diagnosis and the attitude of the doctor, nothing has been done, just a worthless reply letter explaining the doctor in question does not mind if I have a second opinion.
It felt like the maxiofacial doctor is playing god, even the complaints team seem to refer to him as some sort of god. It felt like I was made to feel guilty for making a complaint about this god like person.
I really didn't think the UK NHS system was like this.
Seems like we went to the same doctor:( I was referred to a neurologist who was supposedly the best in his field. When I told him my symptoms and where my pain was located he told me I didnt have TN and that it was a dental/tooth issue and he would refer me to the dentist he worked with ..I said no thank you ..I had already been to 4 different dentist and spent my yearly allowance of dental insurance plus alot of my own money. He was very arrogant (and seemed irritated) that I didnt want to follow his reccomendation to see his dentist. By then I was feeling pretty upset and humiliated by him that I started to cry..((I never cry)..He must have wanted to get me out of his office so he offered to let me try Amitriptilyne...It worked for my pain..He never came right out and said it but I think he thought I was making the pain up and it was all in my head too..So I know how you feel...I hope this year is a better year for all of us...
Hi Stephanie. its shocking how a health care professional can treat a patient in this way.
My first maxiofacial consultant some years ago back in 2009 I think it was, she was much more understanding and had a totally different attitude, but still she did not want to hep me.
Because the MRI can back normal, there was nothing they would do. All she would say was to keep taking the medication and avoid stress. Lol
So it seems this ATN condition is set in stone, I am faced with it for the rest of my life. Unless it disappears all on its own, which I hope and pray this is what happens.
But! I seem to be loosing faith in any God we have, I'm sure they is no god... there cant be :(
Seems like we went to the same doctor:( I was referred to a neurologist who was supposedly the best in his field. When I told him my symptoms and where my pain was located he told me I didnt have TN and that it was a dental/tooth issue and he would refer me to the dentist he worked with ..I said no thank you ..I had already been to 4 different dentist and spent my yearly allowance of dental insurance plus alot of my own money. He was very arrogant (and seemed irritated) that I didnt want to follow his reccomendation to see his dentist. By then I was feeling pretty upset and humiliated by him that I started to cry..((I never cry)..He must have wanted to get me out of his office so he offered to let me try Amitriptilyne...It worked for my pain..He never came right out and said it but I think he thought I was making the pain up and it was all in my head too..So I know how you feel...I hope this year is a better year for all of us...
.I just dont know what it is yet..When my mom was pregnant with me she came in contact with the german measles..I was born blind in my left eye, had heart issues and Marfans disease..I quit breathing when I was three.My dad performed cpr and I lived..Later that year I contracted Spinal Meningitis and had to be hospitalized.A couple years ago I was diagnosed with lyme disease and ended up in the emergency room..I fight with bad teeth now..and the pain in my one tooth, jaw, gums and ear..Sometimes I think I;m going crazy.I suffer from anxiety and some days depression..I went into remission after taking my meds for about 9 months..But the pain came back after I got a cold..It isn't as bad this second time around but it affects my life..So yes I guess we are probably stuck with this the rest of our lives..Until they figure out a way to help us..I do believe stress makes my pain worse but how do we avoid stress in todays world.? Easier said than done..But hang in there!!..I do believe we all have a purpose in this life..:)) It is just too bad we must suffer through it..
God Bless You Stephanie...how much you've been thru and you are still FIGHTING!! :)
I recently had to go to a licensed behavioral consultant for the State as I am filing for disability. Well he made the comment at one point, that it must be "isolating for me". He was asking me about my Social habits. LOL What social habits is what I was thinking .... and when he asked me this question, I couldn't believe it and said...WHAT?!
He repeated it. and I said ....well, it has to be something pretty enticing to get me to go out ...especially in the wintertime!!
But what I wanted to say was...Thank you for pointing that out Captain Obvious....LOL
I really don't think he should be saying things like that to people LIKE US.... especially in the winter, when we can't go outside and at least enjoy the Sunshine...for pete's sake...it got me pretty down,.... in the DUMPS~
Some professionals... just don't want to admit they don't know what is wrong with their patient. It really stinks what he said to you... try to put it out of your mind ..cause WE all know better...!!!
I bring before you Dallas, You know what he's going through right now , the torment and suffering, Father please help him. Open doors that can't be shut for the right treatment, give those who he comes in contact with in the medical field a heart of compassion.
When he sleeps give him a sense of peace and rest. We don't know why you allow this to happen to us but let us use this for those who suffer as well, help us to encourage each other and trust you .
Father you have comforted me in times of suffering through many ailments, I know you can do the same for Dallas.
Bring people his way that will help him spiritually and physically in Jesus name Amen