Hello everyone. I see some names I recognize and lots of other people I look forward to getting to know. I am 36 years old, happily married and I am home all day with our kids, they are 2 1/2 & 4 1/2. They are my dearest friends. The kids handle my Face Pain better than 98% of adults. The only 2 adults that truely try to understand my ATN are my hubby and my mom. Other than the kids and that small 2% it is just you all on the forums that truely respect what we all go through. I learn something every time I read posts. I love to be resassured that I am not alone. I am sorry we all suffer so much and I can’t make it alone in this. I need you all.
Write me a note. I long for grown up conversations!
Me, too. Just signed up Hey Steph, are you “Chasingmytoddlers2”? I love your kids and your stories. It’s been a while since I’ve been on any of the TN boards. My dad has Alzheimers and I’ve just moved back home to help Mom & Dad with his illness.
Glad you are here. I’m so glad these forums are here. Everyone has so many insights and it helps to know we are not alone.
I will be having MVD surgery up in your neck of the woods on Monday the 15th (Virginia Mason). Since finding this website I feel much more at ease about the surgery. This is a wonderful group of people.
Hi Stephanie! I understand what you’re saying. I really don’t think my family really “gets it” - they nod and look like they’re soaking it in but I don’t think they really know. It makes me feel like I’m playing the martyr when I’m in pain, I hate that about TN. I asked the hubs for the Insights book for Christmas and I plan on passing it off to family members to read.
I understand all to well what you are going through. I have actually had quite a few bad days lately and if it wasn’t for my kids and hubby I don’t know what I would do. We are all here for you and do feel your pain. Anytime
Carol, You are very nice to write. I am homebound right now b/c of the snow we have been getting the last 4 days. 12 inches and 2 more frozen underneath. The kids are too short to go out in it for very long. The boots are not high enough! It is beautiful and actually sunny but still very cold. 18 degrees this morning, warming up to 30 degrees. Coming in from the cold to a home that is 30 degrees + warmer sets my face off.
I need to check into the face mask I saw someone talk about on here. I don’t care what it looks like if it keeps me from suffering. The kids will think it’s funny and they’d probably want one too.
I see your kids are older than mine. They need so much love and attention and they do hurt for us. Plus your kids are busier than mine. They have places to be. You just have to take it easy and get help. Sounds like you are like me you just have a couple people that can do that and really be understanding. Are you going through a flare up or breakthrough pain right now or does your pain happen daily or hourly on a regular basis? I hope it is just a flare and it will pass in time for you to really enjoy the holidays.
Thanks again for the note.
Nice to meet you too.
Stephanie
Children accept us how we are, my two grandsons think I am quite funny the little one has found he can take my hearing aid off and tries to put it on him. My daughter is due to give birth she is 41 and it is her first child. ( my grandsons belong to my son he was 40 before he decided to have a family). Glad you enjoy your kids Stephanie wish I could put the clock back to when my own were little, think I was always too busy to realize how happy I was.Also pain free. Hope your pain is not too bad these days and Christmas is just round the corner, it should only be Santa lurking now. Keep writing I want to hear about your kids funny stories. Margaret
Hey Steph, are you “Chasingmytoddlers2”? I love your kids