I Could Be Here A While

General General TN & GPN (Old Site)
1

Well, after 2 and a half years with very few definitive answers, I'm pretty sure I have TN2. A little about my story...developed Lyme Disease June 2011. Through a series of different protocols, I believe to have it licked though this head issue on the left side of my head still remained. I've done the MRI, MRA, CT, SPECT Scans...all came back negative. I've also done the neurontin, tergretol, celexa (for a while last year to get over some depression), sumatriptain and amitryptyline. Nothing works. As long as I don't overdo it, I feel okay. But for the past month things have gotten progressively worse. If the ER wasn't such a PITA I would probably go there, but that relief, if at all, is only temporary.

Tomorrow I see a chiropractor for some cranialsacral therapy. We'll see. It's really rough right now. Glad to find a support group. I have a neuro whom I like and have asked her about Verapamil. anyone here tried this?

Thanks for reading,

Dave

april81972

2

Put that in the search box.

Have you tried anything topical like lidocaine patches?

3

I was prescribed the following:

KETO/INDOM/TRIAM/BUPI-LIPO 10

I only know the INDOM is indomethacin which I have also tried. Forgot about that one, as my mind isn't as sharp as it usually is.

I tried it a few times with no results that I can remember. Maybe I will ask my neuro about the patches.

And what do you mean "put that i the search box?"

Thank you!

april18972