So now my long term recovery begins…a few headaches…more like tension headaches at the base of my neck…pounding in the head if I get up to quickly or move to fast. But seriously…overall…day 6…and doing well.
I would love any recovery tips you may have…I would appreciate all the positive energy and stories you would like to send. Love, Lisa
glad you are home!! I am two weeks out from my MVD i honestly can say that I feel great, I had a few complications, but I was really surprised that the surgery wasnt worse than it was..it wasnt bad at all. My advise is get a lot of rest, I am still exhausted two weeks later, so dont overdo it!!
Hi Lisa
My advice is plenty of rest. Drink a caffeine drink for the headaches. They told me this at the hospital. Drink lots of water too. Don't know about you but I had lost cerebral spinal fluid in surgery and my body had to build this back up. Just taking it easy is all you need to do for the next few weeks. Also need to eat. I wasn't hungry at first but they made me eat.
Just wondering, is your nerve pain gone?
Take care
Connie
glad you are home!! I am two weeks out from my MVD i honestly can say that I feel great, I had a few complications, but I was really surprised that the surgery wasnt worse than it was..it wasnt bad at all. My advise is get a lot of rest, I am still exhausted two weeks later, so dont overdo it!!
No
Lisa011 said:
crashgirl said:glad you are home!! I am two weeks out from my MVD i honestly can say that I feel great, I had a few complications, but I was really surprised that the surgery wasnt worse than it was…it wasnt bad at all. My advise is get a lot of rest, I am still exhausted two weeks later, so dont overdo it!!
No complications…numb in the left check and some ringing in my right ear
Lisa011 said:
No
Lisa011 said:
crashgirl said:glad you are home!! I am two weeks out from my MVD i honestly can say that I feel great, I had a few complications, but I was really surprised that the surgery wasnt worse than it was…it wasnt bad at all. My advise is get a lot of rest, I am still exhausted two weeks later, so dont overdo it!!
No nerve pain at all…on a schedule coming off the tegretol. Very tired and thirsty. Thanks for the note
Connie said:
Hi Lisa
My advice is plenty of rest. Drink a caffeine drink for the headaches. They told me this at the hospital. Drink lots of water too. Don’t know about you but I had lost cerebral spinal fluid in surgery and my body had to build this back up. Just taking it easy is all you need to do for the next few weeks. Also need to eat. I wasn’t hungry at first but they made me eat.
Just wondering, is your nerve pain gone?
Take care
Connie
I echo what others have said...rest and don't overdo it! Listen to your body when it comes to increasing your activity level. It will take a while to regain your stamina and energy level. I had a very hard time getting my head comfortable the first week or two. I found one of those horseshoe shaped travel pillows to be helpful. I am four months into recovery. The numbness will decrease gradually as the nerves that were messed with start to repair themselves. Best wishes for a quick recovery and life free from TN!
Positive thoughts for an uneventful recovery and NO tn PAIN!
Take care of you, ((( hugs ))) Mimi
I am home following MVD on Oct. 18. If I get up too quickly, I get a short burst of a headache, but it is only brief. I did not take a nap yesterday and felt really tired by 7:00 last night, so I showered and went to bed--slept great until 6:15 my usual get up time. I have no pain, as in zero, none of any kind. I am weaning off the Lyrica & feel more alert mentally already. I have full motion of my head and neck. My incision is about 5 inches long and was closed with absorbable suture material. I'll go to church in the morning & probably wrap a colorful scarf around my head sort of like a wide head band so the incision won't frighten any of the children--or adults.
How are you feeling? Do you have any questions or thoughts for me?
Hi Dixie…nice to hear from you.
You seem to be recovering slightly different than I.
I have no pain…per say, but the end of the day my face aches a little.
I have a full feeling in my left ear when I get tired.
The incesion is healing nicely, but I had staples so I’m still a bit bruised and swollen.
I’ve done really well…no tn pain…but I can feel the pathway where the pain use to be as the nerve repairs or bounces back…everyday I get a little stronger…but I make sure to sleep and not lift any thing!
Yesterday was my first full day being up without a nap…but the end I was very tired. I know sleep is key and to listen to body when I get tired.
I’m coming tegretol and I don’t sleep the same…I miss the oblivion the drug provided to sleep deeply. But I like coming off the drug…I like being able to think straight.
Overall I would say…I am doing great, small aches from whatever they clamped my head down with…stiff neck is gone…but the muscles in my neck are recovering from the strain. I full range of motion…
God speed in your recovery…
Hugs and smiles, l
Lisa I have the same thing with sleep, i am up off and on all night where before I had TN and while I was on the meds for it I always slept through the night.
I also get a weird feeling in my face as well, it feels like someone just punched me in the jaw, but it only lasts for a short time and then goes away.
I am so glad everyone is doing well, I feel so much better as well, I overdid it yesterday cleaning my garage and wrenched my neck, but who cares, I feel human again.
Wendy
Over doing it…It’s so easy…have to be mindful, I’m am taking this time to let my family baby me! Brain surgery has to be good for something…lol
I’m sure we will all have our different ways of healing…and aches and pains along the way.
I feel so connected to people i have never met…sometimes I read these notes and I am over come with tears…no ones knows the pain, thoughts, feelings, fears unless you have experienced this awful electric nightmare in your head.
As I move forward…I guess I will count off everyday the pain stays away…and grateful…for small things…like being able to think…smile…eat…and hopefully if I ican be there for someone else who thinks they can’t survive this…I’m still so shocked (no pun intended) that most of the word knows nothing of this disorder. I found compassion for people…you never know what someone lives with…blah…blah…blah…
Here’s to our next 10 or 15 years