Hi all
FaceAche derives from a nickname given to someone who is a bit sour/grumpy faced in Scotland .. just so you know lol
I have had ongoing head pains for over three years now but ongoing headaches for 20+ years which was more than likely due to having APS. I also have Fibro too.
It started with an ache in my neck around the jugular area. Not painful but just annoying and a warm scarf would ease it. I did have one episode of extreme pain slightly lower in my neck which I can only describe as *white pain*. I never got that checked out but I do remember being doubled over kitchen sink balling my eyes out with it :(
It seemed to stem from there on. Jaw/temple and up onto scalp and a pain in my cheek. Now it has spread to occipital/base of skull to rear scalp area across the bridge of my nose/roof of my mouth and just under my eye (this is all right sided).
There is a routine to it all and I noted that the face pain etc came on around day 4 of my period and lasted up to 20 days but now it appears I am menopausal and although there is still a link, it has changed somewhat to just before I start to bleed. I also get an annoying humming in my right ear (bit like when you hold a bottle up to your lips to take a drink while outside and the wind catches it and makes a humming noise). I get a weird headache prior to the face pain kicking in also for days. Only way to describe it is that the area between my brain and my skull feels metallic (abit like when you lick a battery - if that makes any sense at all lol)
The pain my cheek I can feel stemming from what feels like a tendon that links my jaw upwards.
I have seen a neurologist and a Max Fax Consultant. Neuro says its Atypical facial pain and/or facial migraine but does not seem to be typical TN. The Max Fax guy says its due to over chewing.
I dont dispute any of these diagnosis's but they dont feel right at all and I have always held my belief that its inflammation linked and possibly vascular.
I have many questions but dont want to overload this page too much.
I have had CT as unable to get into MRI which apparently was clear. I dont hold much faith in docs due to how I was treated when I took ill with APS and so I question everything and do my research.. the only thing that I have come across to date that fits is Temporal Tendonitis.
Sadly my appointment with the Max Fax Doc didnt go as well as I had hoped and he shot me down by making an inappropriate comment of how I should be able to hold down a job with APS when asking me why I didnt work.. he was rude, abrupt and well, I felt awful at being judged by a medical professional, so I didnt get opportunity to ask him if that is what he thought it could be.. I dont know if i have the strength at moment to fight it.. Neuro is also a bit of a waste of space.. arrogant.. but aren't most of them?
Nice to meet you all .. prob missed out tons.. but am tired and in a bit of discomfort atm :(