I am new to the site and thought I would introduce mysellf. I am from North Lanarkshire, Scotland and was finally diagnosed on Thursday after 5 years. Have had ongoing problems since having systemic infection and have been seen by so many doctors. I guess the good news is now I know I am not going insane. I now attend Neurologist in Southern General Hospital in Glasgow and Rheumatologist in Glasgow Royal Infirmary ( see rheum regarding also new diagnosis of Fibromyalgia). Have now been prescribed Carbazipine for TN and Duloxetine for Fibro symptoms. Both in increasing increments. By next Friday will be on normal doses of both. The good news my symptoms have now abated somewhat although I am still experiencing pain from both but not so intense.
Hi and welcome glad you eventually got a diagnose. I personally cant deal with carberizpine pleased its helping you.
I was diagnosed last year after 6 mths of pain and numbness, I am using Chinese doctor at moment in attempt to avoid medications but im not sure how long I can keep going to him before his acupunture stops working for me. Doesnt stop pain but does help me manage the pain a bit.
People on here are lovely if your needing help some always seems to be able to help
First of all, welcome to the group, we're a friendly bunch!
My name is Dee & I also suffer from both TGN (13 yrs) & Fibromyalgia (21 yrs), so I can empathise with your position. Like most of the people on here, I have gone through the plethora of drugs being used for both of these conditions. Each person is different, so it's a bit like trial & error to find the concoction that will work for you. I recently had a Lidocaine infusion for my Fibro & although it hasn't made a great deal of difference for that, it does seem to have had a rather pleasantly surprising positive effect on my facial pain levels & as I'm sure you'll understand with TGN & Fibro... I'll take whatever relief I can get! :-)
However, getting support/advice from fellow sufferers is an important factor in getting through the trials we face & you will always get that here!!
Thanks for responding, it is good to know I an not alone with these two conditions though I am sorry that anyone else has got to go through this horrible pain. Knowing there is someone who understands makes a big difference.
Thanks for you kind welcome and support.
Ann
Deanne1407 said:
Hi Anan,
First of all, welcome to the group, we're a friendly bunch!
My name is Dee & I also suffer from both TGN (13 yrs) & Fibromyalgia (21 yrs), so I can empathise with your position. Like most of the people on here, I have gone through the plethora of drugs being used for both of these conditions. Each person is different, so it's a bit like trial & error to find the concoction that will work for you. I recently had a Lidocaine infusion for my Fibro & although it hasn't made a great deal of difference for that, it does seem to have had a rather pleasantly surprising positive effect on my facial pain levels & as I'm sure you'll understand with TGN & Fibro... I'll take whatever relief I can get! :-)
However, getting support/advice from fellow sufferers is an important factor in getting through the trials we face & you will always get that here!!