Has anyone seen Dr. Michael Lim at Johns Hopkins in Baltimore

General General TN & GPN (Old Site)
1

Hi,

I am scheduled to see Dr. Michael Lim a neurosurgeon at Johns Hopkins this Thursday, January 30. I am I chose him over Dr. Casey because he was on my insurance plan and Dr. Casey was not on the plan. I was wondering if anyone has seen him and could share your experience with me.

I have seen 3 other neurologists and one neurosurgeon. Each neurosurgeon has told me I have TN and two of the neurologists and the neurosurgeon has also told me I have TN plus hemifacial neuralgia. I currently am taking 150 mg. of Topomax. I have tried Tegretol, Neuronton, Lyrica and the other medications, but they had too many side effects. Topomax also has lots of cognitive side effects. My pain levels are not constant, but the electrical shock like feelings never go away.

One of the worse things for me is that whatever is going on affects my speech. My tongue feels fat and my gums hurt. I have chronic pain in other areas that have nothing to do with TN--at least I think that is the case. I was also told I need to have a MRI-F or MRI protocol I think it is called so hopefully I can have one done there.

Red has already told me he is a good surgeon. I was just hoping someone else had been to see him.

Any information would be greatly appreciated.

Linda

2

Dr. Lim was my second choice, but Dr. Casey was closer to drive us home after MVD.

I have seen a video conference of Dr. Lim, and if I ever have to do it again, when Casey retires, I would see Lim : )

Let us know what you think!

3

Hi,

My first appointment with Dr. Lim had to be canceled because of the ice and snow and my flight was canceled. I saw Dr. Lim at Johns Hopkins on Thursday. He was just great. We discussed various options for me. I have such trouble with the medications and so we agreed for me the best option was the MVD. I am to schedule it this next week. It will probably be in April.

I will keep everyone apprised of how things go.

Linda



Kc Dancer Kc said:

Dr. Lim was my second choice, but Dr. Casey was closer to drive us home after MVD.

I have seen a video conference of Dr. Lim, and if I ever have to do it again, when Casey retires, I would see Lim : )

Let us know what you think!