I am seeing a neurosurgeon next month for a second opinion and see what options they have in the KC area. I would hate to fly to California but if it works then I want what is best. I am a ER nurse and I can not afford to be off work for a month to recover but right now I just work, recover and re-energize between shifts. My medications are amitriptyline, Imatrex, Lyrica. It is winter and my pain is off the radar and no amount of medication is helping.
I am not one that really wants to damage the nerves in my brain so I would like to do the Microvascular decompression. I have only been dealing with this since a car accident in june 2012 but was just finally recently diagnosed. The results of my mri/mra that Dr, Shahinan from skullbaseinstitiute ordered showed that I have bilateral trigeminal neuralgia. I am not suprised by that and it explains the burning sensation I get a lot on my left ear.
My injuries occured when I was not wearing a seat belt and a car came out in front of us as we were driving 55 mph and did not use the breaks. I have no idea what my head hit but I am sure the car seat and the the seats in front of me. I was in the middle passenger seat. I think the air bags saved me from going through the window.
My health insurance is jacking with me and doesnt want to pay for any procedure if it was due to a car accident, they want his insurance to pay for it. I have tons of medical bills but I feel like I need to do something right away because I can not take the pain. I need relief now but sleep is the only way out.
My two best friends came over to my house "for an intervention", because I have not seen or gone out with them since Oct.. I stopped answering their calls and texts because I get tiered of saying, i do not feel good and I do not want to go out or come over. They think I am depressed because all I do is sleep and work. I am not depressed, sh*t I have been on amitriptyline since june or july 2012! It is a antidepressant. I am sick, with TN. My friend is a nurse and the other one might as well be and I can not even get them to understand.
Many people do not know what it is and when I try to explain it they just do not get it. So I would rather and I do pretty much keep it under wraps so not many people know about it.
I can tell you as a ER nurse I have much compassion for my patients and make sure I do everything necessary to keep keep them as comfortable as possible. Pain is what the patient says it is and I make sure the doctor knows and we treat them. Maybe this is why I was dealt this card. I have wished death upon myself to get out of pain, even to the point that I have written out everything. I would never do anything to hurt myself but this suffering can get unbearable.
That is when I dig from deep down in my soul and know that god has a big plan for me and I am not going anywhere, I know it is up to me to get treatment to get out of this pain and that is what I am trying to do.
Any suggestions on what has worked, recovery time..anyone try any research clinicals? there is one with a nasal spray. I am thinking of trying it since it less invasive. I would go to Chicago and get it done.
Thanks for letting me vent and write a book here tonight. Pain free is what we all want to be. :)
and feel so lost. I’ve been on meds for 3 yrs just had a spinal cord stim placed in July it has helped but I still have pain/burning all the time. Please share if you fine something that works.