It's been a while since I have been back on this site and sorry about that. It seems to have a ton of info and support. I went on neurontin 300mg in February and I have to admit that I have had the longest time without pain since I found out that I've got TN. I usually have flare ups every 6 weeks. I have managed to go 8 weeks without one until now. I woke up this morning, not able to talk or drink, but I made myself so I could take my meds. I have been debating on going to the emergency room all day because the pain won't go away and all I want to do is cry. This is not like me. I have an appt with my neurologist in a week and I know I won't be able to get in before that!! I am not sure as to what pain meds would work, my neurologist saiys there is no pain meds that work with TN, but yet I read that there are. Help!!! I would take just about anything to get rid of my pain be able to take meds without flinching, able to swallow without pain!! Does anyone know a decent neurologist in the Rockford, IL area that is really familiar with TN?
Thanks for any and all info.