No one saw anything concerning TN on my MRI ( no big surprise), how ever they did see a mass on the left parotid gland. So I am going to see a n ENT for a biopsy. Unless this is common in TN and I shouldn't do it.
The good news is the carbamizepine is working very well for me.
I'm new here and just wanted to say That is very good news that your medicine is working for you! I hope the mass turns out to be nothing serious..Maybe that is what is causing your pain.Hope all goes well...
It's weird to be pain free. But I like it.
Good to hear the medication is working, sometimes I wish I had known to enjoy my pain free days before I got TN.
Hope the thing on the gland turns out ok.
Hugs
Trish
I always thought it would be scary to get a high-definition scan like an MRI in case they see other stuff! In my case they couldn't see anything setting off my TN (apparently you can still have blood vessels etc that don't show up on MRIs) but they caught my neck and saw a 4cm growth on my thyroid and that my c-spine is very worn already (I'm only 35!). So I am hoping to get that side of my thyroid out (I ended up toxic about 6 months after the scan because nobody treated it) well over a year later and it now bulges out of my neck so hopefully soon, am on the waiting list.
After my MRI my husband said "hey at least we now know you DO have a brain" ... the cheek! :)
There are a few of us here that happen to have symptoms or problems with salivary glands…but usually it is auto immune related.