I have GPN from a tonsillectomy done in Feb 2011. The majority of the pain has subsided. I am now dealing with a terrible metallic taste and terrible sensations on the right side All DAY long!! It is terrible. My ENT put me on neurotin 3x a day. I’m not sure that it is helping. Nothing tastes right when i eat or drink. Does anyone have any suggestions?

Hi Lizabrth. I had a tonsillectomy 6 years ago because my ENT thought that all the pain (right side only) was due to nasty tonsils. Much later, I was diagnosed with GPN, which has been much worse since the tonsils came out. Is your pain bilateral or unilateral? I also have the bad, bad taste - just on the right side of my throat and tongue. My pain (when I have it - sometimes I have almost complete remission - but it comes back) is an all-day thing too. I didn’t know a tonsillectomy could cause GPN…why did you have your tonsils out and how old are you? I’m 56 and my pain started when I was about 44…sadly, I’ve had this for a long, long time. I tried lots of anti-seizure meds, antidepressants, pain meds, etc. Over the years, on the pain scale, it’s gotten better. Most of the time, it feels like an ice pick is stabbing my ear drum. When it’s really bad, I don’t like to talk and the inside of my mouth and my throat feel weird - like something’s in there. I’ve been scoped and poked and prodded. And results are always negative - bringing me back to “I just have GPN”. Hope you’re having a pain-free day. So sorry you’ve been diagnosed with this. Nikki

Hi Nikki,

I have not been diagnosed yet but one ENT has suggested that I have GPN. My pain is mostly on the left side in the tonsil area but also all throughout my throat. I also have excessive scar tissue on that side and the surgeon did not remove the tonsil all the way on that left side. I have grown depressed thinking about all of this. My pain is not episodic at all and it is constant and excrutiating. I have not been tested for Eagles Syndrome. My pain fluctuates- mostly on the left and then sometimes it will switch to the right and down the middle. I had my tonsillectomy in January 2011 and it is now July. Both Ent's think the pain will subside once the scar tissue is resolved but I am really thinking I could have GPN. Do you think the scar tissue could be causing the pain? I have scheduled an appointment with a neurologist so hopefully I can get a quick diagnosis. I have tried Gabapentin and am taking 900 mg and no relief whatsoever. I can barely function as my pain is constant. I definitely do not have the symptoms of GPN but do have the throat pain and nothing else. No ear pain, ect. I sometimes wonder if I have some sort of deep infection that is still not gone away. All I know if I am in pain every day and need answers. Nice to share my story. -Suzie

Hi Suzie.....are you the same Suzie that's on the GPN Support Group on FB? I just left you a private message a few moments ago. Nikki