Good little patient. Following instructions

Archive Blogs (Read Only)
1

So I was a good little patient today and followed my Neuros instructions to have my neck looked at.

Off I tottled to the physio. The physio had a darn good look at me and couldn’t really find anything wrong except for a few little joints at the base of my skull that were a bit tight.

He expects only a small chance the my facial pain is coming from these joints. Although, he is going to treat them regardless to see if there is any improvement. What he did actually felt very nice. Uncomfortable but yet satisfying. Like a itch you can’t scratch!

He is going to write to my Neuro with his findings. I asked him, as I do mostly everyone - if there is any chance of it being some sort of Neuralgia. For which he said no, as if it was referred pain - it should have arked up when he manipulated and touched me a bit. I did get a tiny shot of pain in my jaw when he did one movement, but it was only the once. But as far as I know (or have read) this doesn’t always have to be the case.

Ho hum. I can feel the pain starting to come back as I type. I am so 90% sure its something to do with Occipital Neuralgia. The other unsure 10% is only because I am not a medical professional. Ive been through enough with my head and body to be able to read and understand what happens with me very very well. I am tuned in. I have to be tuned it, cause if I am not - people just tell me I have emotional problems.

The physio also touched on that topic, ‘emotional’. “If I fear the pain, I can create it”. I sat there and smiled and secretly wanted to punch him in the nose! I am SO sick of getting type cast. I know I do panic and get very anxious. Its only because I have to deal with these crazy things in my head that get left untreated for so long, despite my best efforts, passed off from Dr to Dr … If I get proper treatment then the anxiety melts away. Simple as that.

I fear this is going to be a long process. I do love my Neurologist, but he is defiantly a man of process and elimination. Which is all very well, except when your quality of life is slowly sinking …

Toot-a-loo for now!

2

Good that you went along at least, and that there was a small amount of relief from the treatment :slight_smile: I know I too have been basically told that I am making myself feel that there is pain/making it up/confusing it with something else/it’s “all in my head”… yes - it really is all in my head and it is darn sore!!

Hope your day goes well and it is painless :slight_smile:

3

It … drives … me … insane! I know what I am and what I am not. I KNOW I do have some emotional issues but who wouldn’t? When your brain is hell bent on destroying your life, It tends to get a little scary! But just because you have those problems it doesn’t mean that it IS the problem! It as if, they look at what they can, cant find a problem, and then pigeon hole you just for their own peace of mind.

4

I know just what you mean. Had the same experience with an out of hours nurse and an A&E doctor - turned away from both because there was nothing they could do about the “issue I was suffering with”. As if!

5

I hope I don’t sound mean, really don’t wish this pain on anyone, but I would like to give it to all the docs and people that have told me that for just a week, take it away and give them a zap and ping, ice pick, burning stab for a bit after a month just to see if they FEAR THE PAIN!

6

Hi Guys,

Thanks for your reply, yes - it did turn in to a bit of a rant! haha.

As I was typing I was processing everything and the whole frustration of the whole ‘it might be emotional’.

As previously mentioned - I lost about 10 years of my life due to Drs and Neurologist not wanting to find the real cause of my very distressing, scary and abnormal condition. It turned out to be a migraine varient (which is now treated). I started seeing a GP. He was kinda. One he said to me 'why would you come and sit on this chair every week if there isn’t something actually happening to you;. Every other Dr made me feel like a waste of time. He gave it a shot, gave me a abortive-migrane pill and two weeks later I was a new girl. Amazing!

As I have grown I have learnt that I know myself best and to TRUST myself.

So I will continue to go through the motions with my Neuro, follow his instructions - although I simply, will not take the ‘emotional’ explanation laying down!