Jamie, you are right. I am probably repeating myself, so sorry if I am, I love the site called www.butyoudontlooksick.com for everyone with an invisible illness. Love "the spoon theory" on there, that describes just one aspect of how we live to those who wonder.
Blessings, Sheila
Hey Sheila,
How are you? Are in? If so I 'll come up and visit. If you are up to it.
Lori
Sheila, I do not think that it is stupid at all that you are jealous of the care that you give to your Mom, in fact, I think it is insightful and honest that you are aware of this. It shows how open you are and committed to finding the best way through this horrible situation. You deserve to be looked after as much as your Mom does and I am so sorry that you do not have this in your life right now. You have been so strong and steadfast through this crisis and have proved to yourself what can be done if need be. You are right, though, that you are running on empty. It's simply too much for one person to handle on their own. Having a home nurse seems like it would be so helpful and it is shocking that they are making you jump through so many burning hoops to make this happen. It is such a shame that your compassionate doctor is so hindered by the system. It must be heartbreaking for her to not be allowed to provide the full support to her patients that she would like to.
Trying to find a long-term way to take care of both you and your Mom is, indeed, daunting, and taking one day at a time is so wise. You have perseverance, strength, courage and faith on your side, and I know that you will make it through this.
I hope that you and your Mom are both feeling better after your escape from the hospital and that you have a day filled with peace and healing with a small victory here and there to buoy your spirits. I will be sending the both of you good thoughts.
Take care,
Chris
Lori, Oh Gosh, I didn't see your message until now, 2 weeks later! Sorry I didn't see and reply. Exhausted half to death at the moment. Hoping, praying to be renewed and strebgthened and to find some friends. I lost my wallet yesterday, and I prayed to find it, and was thinking that I can't even drive to the licence bureau w/o my driver's license, yet I don't (Oh my stars I just blacked out and my hand was on the space bar, and it typed about 1 foot of spaces. Will take a while to delete them all.) Ok, back. I was saying I don't have even one person I could call to get a ride to the license bureau. It is horribly frustrating! I hope we meet soon. I would like to be your sounding board, or whatever I CAN do for you except for physical things, and I know your condition so I wouldn't ask favors from you.
Chris,
You have such a wonderful way with words and with compassion. You have given me a lot of insight and I appreciate it. ((hugs)) Sheila
Sheila, that made my day! You are far too kind and so sweet to say that. Thank you.
((hugs))
Chris