Does anyone on this blog suffer from GN? I haven’t seen anyone on here that suffers from GN which effects the deep inner ears with stabbing pains. I’ve suffered for 8 years with GN,most recently had my 2 brain surgery but still have to take medication. I’ve had a motor cortex stimulator implanted because I was desperate to find relief!
Hi Lumber, I get this one, I call it knitting needle ear - because it feels like someones stabbing you Yay :) If you head over to our Living with TN community there is a group for GN over there. Not sure how active it is, but if you post a discussion I'm sure someone will respond. You can find the community in the right hand side ribbon of this page.
All the best,
Smiley.