Gamma knife

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MY DOC. TOLD ME THAT THE gamma knife WAS NOT USED FOR GPN. BUT THEN AGAIN HE HAS ONLY DONE ONE OPERATION THAT INVOLVES CUTTING THE NERVES. AT THIS TIME I DON’T THINK I WANT TO TAKE THE CHANCE. MY PAIN IS NOT TO THE SPASM STAGE. THE SPACERS HE PUT IN AT THE LAST OPERATION SEEM TO HAVE STOPED THE SPASMS. THE PAIN AND BURNING IS BACK. CHUCK

2

The third site on my post is one case of gamma knife used successfully (11 months, so far). Who knows if there are more. I am in contact with Tufts gamma knife people, but I think they have never done a GPN. I need much more info. Still seeking. Will share. Jimmy

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THANK YOU. I NEED ALL THE HELP I CAN GET

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Hey Chuck,

I know of one person who had it unsuccessfully, but I have no personal experience of it,

http://www.mayfieldclinic.com/PE-PSR.htm

this link might be of interest to you, it seems that they don't reccomend it for gpn unless you've got cancer related issues in place already cause it's likely to do more harm than good from what I can figure, but have a wee read and see what you think, hope its of some use for you.

Much love

Gracie x x x

5

THANKS. AS WITH GPN, MY PAIN HAS GONE FOR NOW, WILL READ WEB SITE. HOPE YOU WILL FARE WELL.

CHUCK

Grace Mackay said:

Hey Chuck,

I know of one person who had it unsuccessfully, but I have no personal experience of it,

http://www.mayfieldclinic.com/PE-PSR.htm

this link might be of interest to you, it seems that they don't reccomend it for gpn unless you've got cancer related issues in place already cause it's likely to do more harm than good from what I can figure, but have a wee read and see what you think, hope its of some use for you.

Much love

Gracie x x x

6

I went to Pittsburgh to Dr. Peter Janetta, who discovered the gamma knife and the MVD surgeries for this pain. After the 3rd very unsuccessful surgery though I said, “no more”. There is a Dr. Tew in great group in Cinci, who studied with Dr. Janetta, also very good, but now Dr. Janetta I think, is too old! Others in his group are ok, but after my last surgery there left me deaf in left ear, and left facial paralysis, I opted to live with the pain everyday. Think it is a great procedure for most and pretty successful. Think mine was more atypical, since I have my pain most of the time, unlike the typical that pain is increased, or noticed when swallowing or using that nerve. Hope this helps.

James A Foster said:

The third site on my post is one case of gamma knife used successfully (11 months, so far). Who knows if there are more. I am in contact with Tufts gamma knife people, but I think they have never done a GPN. I need much more info. Still seeking. Will share. Jimmy
7


Kim Kaleher said:
I went to Pittsburgh to Dr. Peter Janetta, who discovered the gamma knife and the MVD surgeries for this pain. After the 3rd very unsuccessful surgery though I said, "no more". There is a Dr. Tew in great group in Cinci, who studied with Dr. Janetta, also very good, but now Dr. Janetta I think, is too old! Others in his group are ok, but after my last surgery there left me deaf in left ear, and left facial paralysis, I opted to live with the pain everyday. Think it is a great procedure for most and pretty successful. Think mine was more atypical, since I have my pain most of the time, unlike the typical that pain is increased, or noticed when swallowing or using that nerve. Hope this helps.
James A Foster said:
The third site on my post is one case of gamma knife used successfully (11 months, so far). Who knows if there are more. I am in contact with Tufts gamma knife people, but I think they have never done a GPN. I need much more info. Still seeking. Will share. Jimmy
REPLY TO KIM: I WENT TO VANDERBUILT UNI. HOSPITAL IN NASHVILLE TN. AND WAS OPERATED ON IN NOV. 2009. THE OPERATION CONSISTED OF PUTTING SPACERS BETWEEN THE NERVE AND THE VESSEL AT THE BASE OF THE BRAIN. I HAD SOME PAIN SHORTLY AFTER BUT IT WENT AWAY AND HAS NOT COME BACK IN 20 MONTHS. THE DOCS. NAME IS NEIMAT. ph. 615-■■■■. I WOULD HIGHLY RECOMMEND HIM. GOOD LUCK AND I WILL BE PRAYING FOR YOU.
CHUCK

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Thanks Chuck, but did this person have trigeminal then? They do say the MVD and I guess the gamma knife surgery which BTW Dr. Janetta told me he wished he had never invented, does not work for esp. the atypical GPN. It looks comparable to the surgery I had, with the incision in identical location. Janetta used a teflon type sponge or wrap, but the first MVD he forgot to put the wrap on bare nerve, he just untangled the blood vessels form the nerve, then closed. :( This was noticed during 2nd MVD 6 months later. I've never Heard of them getting near the base of the brain, would that be the brain stem? I was told that it wasn't safe to get NEAR the brain stem? I'd be interested in seeing a diagram of where the GPN is compared to trigeminal, when entering the same location for doing MVD for trigeminal, ya know? I guess I wonder if that is why most MVD's on GPN's is unsuccessful, maybe there is a more assessable area to enter to work on that nerve? What a great diagram though, thanks for your time, Chuck!

Take Care-Kat

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I HAVE HAD VERY GOOD LUCK WITH MY SURGERY. EVER SO OFTEN I GET A STICKING IN MY THROAT BUT

I CAN STAND THAT BETTER THAN THE SPASMS. MY SURGERY WAS IN NOV. OF 2009. I AM WELL PLEASED

SO FAR.