Meds aren’t working for me. I still haven’t tried Neurontin.
Two questions: what are the common side effects of Neurontin
And
Has anyone done Gamma Knife with success? What have you heard?
I’m getting a bit desperate. Thank you.
Neurontin made me tired and woozy and would forget words
You really should go up to the groups tab above - then go read postings under the gamma knife group
Are you a candidate for MVD?
If you have Gamma first, and it fails, it will lessen success of MVD .
Read allllll you can! Keep posting!
Probably not a great candidate for MVD since my platelets are always on the low side and I have ATN. I haven’t seen a group for Gamma Knife.
Many years ago I tried Neurontin for migraines and it made me gain weight and I was a little foggy.
I am frustrated and sad.
I am on Neurontin and Carbatrol. The first few weeks on the Neurontin were a little rough. I was tired and felt drunk when I drove. But, now I am back to work and can't even tell I take it. I had Gamma Knife done on December 7, 2012. So I am just 4 weeks out. They say to give it 3 months but if you ask me today...it didn't work. I am hopeful but the pain is right back to what it was before. The first week after I had it I was hopeful and actually felt good. It has been down hill from there. My Neurosurgeon suggested MVD but it seems terrifying to me. I am only 35 I have 2 kids and a husband to care for. I don't want to be out of commision for several weeks. I am not sure what to do.
I just wanted you to know that I have read success stories of people that have had Gamma and I still have 2 months according to the Radiology Oncologist that performed the procedure. But, I am in pain again.
Hi Nomad, I had Gamma Knife surgery on Sept 25th,2012. I am now without pain but am still taking 3times a day two Tegretol. Before the Gamma Knife, nothing would help with the pain, not the Tegretol nor the nerve blocks I received every three weeks. I can eat without any pain but have to stay away from hard food, like raw carrots for example or I do feel some pain. On Dec. 3rd I had a very bad stomach flu, I passed out fell very hard on the back of my head and would not regain conscientiousness for a very long time.Luckily my wife heard the noise and called 911, it was 1o'clock in the morning. well to make a long story short in the ER after the Xray they found a scull fracture and I was transfered to UCSD Trauma center in San Diego. I was there for three days and did not get my Tegretol and the pain came back . . .since I had a neckbrace pushing exactly where my main pain was . .lower left jaw . . I thought I would loose my mind . . . but I was lucky', as soon as I was home and after taking my medicine for a week the pain went away again. I have to say that Gamma knife has helped me a lot. Good luck to you hope you'll be pain free soon. Norby
I can't remember if i mentioned this to you nomad but there is another site called "facial pain association" they are based out of florida! its worth a look!! I tried Neurontin for 1 day and it made my symtoms worse as did the tegretol. i have read the tricylic anit depressents are better for 24/7 pain thats why i decided to try them. They honestly havn't made me feel out of it or dizzy i feel pretty normal just waiting for them to help with the pain
Are you experiencing any dry mouth with the tricyclics antidepressants?