Hello, I am thinking having a Gamma knife or radio surgery for my TN this fall.I just wonder if anyone has had any experience with this type of procedure, and can give me some information about it.Thank you very much for any help............Dave W.
Are you a candidate for MVD? More people are starting to look at these other procedures if not able to do MVD.
PUT gamma or whatever other terms in the search box and research verrrry thoroughly.
Then come ask more questions…somebody will help soon!
Dear Dave:
'I had gamma knife at Marshfield Clinic here in Wisconsin on 12/21/12. It took almost 3 months for it to kick in, I am now off ALL TN meds (Oxycarbazepine, baclofen, clonazepam) and Prozac as I am no longer depressed. I did curse my surgeon daily for the first few months, as I had no pain abatement, and then whammo. I get a twinge by my left nostril a few times a month, but it is nothing worth being medicated (aka conked out) for.
I researched MVD and was all gungho on it, until I found a surgeon who has done hundreds of gamma knife and had good statistics, I already had brain surgry a few years back and was not looking forward to more grafts/plates, whatever. Two other consulting surgeons also recommended gamma knife before MVD for me. I was kept in hospital overnight, worst part was the oozing where they screwed the frame to my head. I played Scrabble against my husband while waiting for the surgery, do you think he could let me win????
Let me know if you have any specific questions. I was a TN sufferer for 1.5 years before I had surgery.
Have a pain free day,
Mollycule
Thank you very much for the reply to my question about gamma knife surgery.I have heard good things about this type of procedure.I think this fall I will try to have the operation done.I was also all ready for an MVD but my wife and my self are not really sure we want to go that route. I have had TN for 8 years and have been lucky after he season changes,because the pain attacks seems to go into remission in warm summer months and the cold winter months.Season transistion peiriods are very bad.Thanks again,for the information Mollycule,and the best of luck to you.....Dave
Just want you to be aware… That if you have gamma first…can lower success rate for MVD later…this is recent awareness.
Just keep researching stories and studies and find what feels right…you just have to soak up all the knowledge you can before delving into these procedures…
Keep posting
Thank you for the advice,it is very welcome.......Good luck ...... .D.ave
Kc Dancer Kc said:
Just want you to be aware.... That if you have gamma first.....can lower success rate for MVD later....this is recent awareness.
Just keep researching stories and studies and find what feels right.....you just have to soak up all the knowledge you can before delving into these procedures......
Keep posting