Finding the humor - what have you had to give up because of this disorder?

I had an attack once while eating icecream and now I’m scared to try it again. I should do though.
I have to wait for food to be cool before I can eat it. No soups.

Still, fast food is cold when you get it so I treat myself to some fries from burger king every now and then

I keep away from the ice cream and any chilled food, I have to settle myself down on the right side at night, no leaning the left side of my head on my hand as the temple is so tender. Hot food is ok for me, a hot drink helps confuse the nerve in my tooth.

Tying shoe laces. Bending is a big trigger for me. Welcome velcro!

Feel for you Lisa, when I am bad even sipping water hurts.

Gotcha Jackie! I had to buy some slip ons. No more ties!

I think the hardest thing I have had to give up is HAMBURGERS! My favorite food. I have been pain free for about 4 weeks but I have yet to have one. My mouth is watering and it is 8:00 am!

I cut them up. Im the only person who comes into McDonald’s with a knife and fork lol

Amber i bet they think what a lady! Jackie and Kim do they do 6" stiletto's in velcro!

This thread is brilliant, it has really made me laugh, smile and frown for some all at the same time!

Like manyof you, my IQ has gone down the drain and I've got used to other people finishing off my sentences for me but I'm hoping that one day this will all come back to me.

The biggest thing I have had to give up so far is my car, I just want to be able to drive again, I really miss my independance and being able to get around and about on my own.

I also can't wait to start reducing the drugs due to weight gain......and it will be great when I really start feeling the urge to wearing hair slides again ha ha!

cold foods, crunchy foods, restaurants, pony tails, glasses, coffee, caffiene, concerts, parties, just about my whole life.

i used to be out every night, going to shows, social butterfly with friends, and was never, never at home.

now, you can't get me out of my fat pants. my 30th birthday was last month and the noise from the restaurant was enough to get me home and in bed within two hours.

oh, and i have given up my savings account.

sometimes i think the only way i'll find a husband is if he ends up being a doctor or nurse, because those are the only new people i meet. :)

Of course,shall I send you the latest Ecco catalogue ?



elstep said:

Amber i bet they think what a lady! Jackie and Kim do they do 6" stiletto’s in velcro!

Lol Jackie, I actually work steel toe boots for work!

I have had to give up being a work-aholic, friend-aholic, activity-aholic ...

I have the biggest struggle learning to ADAPT

I wear my glasses on the outside of my ear and when I'm in public I wear knitted headband (it's winter, so I think it's OK :) and put the glasses on the outside of that (I think I look less goofy?!) ... but I can't wear hats oddly enough

I don't wear make up very often ... it can hurt to apply

I sleep all the time and I'm exhausted all the time!!

I'm constantly checking the time to make sure I haven taken my drugs on time ... and making sure I have enough always

I LOVE Pinot Nior but the idea of red wine or warm foods make me want to barf ... so I drink cold white wine instead (I will never give up wine!!)

I can't wear headbands, I loved headbands

I avoid being around big groups of people or new people because I loose my words all of the time (damn tegretol) and it's embarassing

I can't sleep on the left side of my body (my pain is on my left side) ... I use to love to curl up on that side

BUT I'm getting MVD on Wed.!! I'm extremely hopeful and am very excited!! Cheers to you all!

Jessica - whether you intended it or not, I got a good laugh out of your list as it reminded me of ME. Please let me know how your MVD goes. Where are you having it done?

Oh, interesting topic.

I miss Beef Jerky. It was a staple for me whenever I was on a diet because it tastes good and is full of protein.

I miss chewing gum, especially Teaberry.

I miss Twizzlers.

My main trigger is chewing and eating in general, but these are the main things that come to mind.

Blessings to all,

Stef

Now, the things I have not had to give up: Bradley Cooper, Ryan Gosling, and Josh Lucas -- In fact, I have more time to watch their lovely faces :)

I have given up on washing my hair every day... big bummer there.

great conversation! I have given up on:

chewing gum, cold foods (ALL of them...bummer), crunchy foods (have to cut salads into tiny pieces to eat...looks weird), any pressure on my left side - constantly waking myself up at night because I still roll over on this side, thinking 'on the fly' (makes it difficult when a student asks me a question sometimes...), initiating plans with friends / family - used to be the one that everyone came to and depended on... ugg)

NOT given up:

on myself...through faith and a good upbringing, I know I am strong and will try to remember who I am and where I have come from and what I have overcome in the past. This kicks my butt some days, but not every day...thankful for that.

...and Jackie, I am with you! Not gonna give up on THAT!!! :D

So glad about that Cris, as I said we gotta have something to look forward too!

O Well thats at least two of you still wearing hair clips!

Chis, I also keep waking myself up by rolling over onto my bad side

yep... (sheepish smile)... ;)

elstep said:

O Well thats at least two of you still wearing hair clips!

Without maintenance, I still have luxurious eyelashes.

My other list is longer. bob