Strikes back after 5 year remission. Back on meds. How long until they take effect??? I’m having a rough time coping 
What meds are you taking? Carbamazepine/Tegretol is the best for me. I’m so sorry I do know what you’re going through. I hope you get pain free soon.
Thank you. I am taking Trileptal. I took Tegretol previously and really took a cognitive hit :(.
I took trileptal, too. Takes about three weeks to get up to needed dose.
Oh dang :(. Good to know, though, thank you.
Apple we are really sorry for your pain. We all hope that you feel better soon. I myself am having a real upswing in pain . In addition to my usual tegretol I can add promethazine(not sure of spelling). It is also called finnegan, I believe. It’s given for nausea, and general pain control. Works for me, but it also makes me sleepy.
Has your doctor given you anything specifically for pain?
Thoughts and prayer your way.
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Thank you it’s helpful that this community exists. I’m sorry for your upswing. I haven’t heard of those other medicines. Nothing else offered from the doc yet. I’m trying to stay positive but I have to admit that fear is creeping in again, I worry about the medicine not working but I’m reminding myself of what I learned here that maybe I just need to be patient…
Sorry for your facial pain coming back. I too was in remission for 5 years. I started having sensory issues and pain started to come back as well as dental pain.
Was put on gabapentin. I use l lLidocaine Ointment on my face to help with sensory. It’s all been helping. I have TN2 Trigeminal Neuropathic cause from dental work. Fear is real, this is a very difficult pain to deal with. I pray and try to only look as far as the head light of a car. If you look farther the thought of this pain daily can consume your every thought. Praying for healing for you and all the suffer of TN1 and TN2
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Thank you for your answer and thoughts. I hope your pain recedes, and that another remission might be just past those headlights.
Apple
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It’s great when whatever we are dealing with when it goes into remission. I still haven’t received a proper diagnosis for why my gums burn so bad. I heard TN , TMJ , etc…
I have seen specialist and they are at a loss. I can’t explain and make them or anyone understand the burning is so bad it’s a death sentence. Quality of life is at a 0 when I start having this burning pain in my mouth. The good news is it hasn’t burned since the last 2 years I believe. It’s been in remission. I know when or if it comes back life will not be good because this last about 4 months every day until I go too sleep. That’s what i don’t understand. When I sleep I’m ok and I’m ok when i wake up. As soon as I make my move and get out of bed , this is when it starts and will continue throughout the whole day without any easing for me. It’s a death sentence on how bad the burning is. I honestly can’t cope. 3 times in the last 5 years I have had this. This is the longest I have gone with it not coming back. I pray that this will stay in remission until the day I die. It’s the scariest thing I have ever experienced dealing with the burning sensation in my mouth. I understand when people say how much pain they are having cause I get it. It’s unbearable too live with. You go to emergency and they have no idea what to do for you. They just think you want too get shot up with something to help the pain. It’s so sad that doctors think this way and there are legit people who need help with the pain they are experiencing. I just hope this will stay in remission and never comes back cause I don’t know what I would do if it comes back. I’m actually scared to think about it. Good luck to all of you.