LETS TALK EAGLES..... HOW IS IT DIAGNOSED.? SURGERY TO CORRECT IT? DOES THE EAGLES'S SURGERY HELP WITH THE HORRIFIC EAR PAIN. CAN A NEUROSUGEON DO THE PROCEDURE OR DO I NEED A E.N.T. SURGEON?
ANY INFORMATION WOULD BE HELPFUL AT THIS POINT. I AM HAVING THE SURGERY ASAP. THE PAIN AND MEDICATIONS ARE DRIVING ME BATTY!
THANKS KATHLEEN PITTSBURGH PA USA
LOL FUNNY MY NEUROSURGEON JUST CALLED OUT OF THE BLUE. WELL HE SAYS E.N.T. SURGEON WILL DO SURGERY AND THAT THE EAR PAIN MAY BE REFERED PAIN FROM THE EAGLES AND THAT WE WILL ONLY KNOW AFTER THE EAGLES SURGERY IF IT WILL GO AWAY.
PATIENCE IS NOT A VIRTUE THAT I HAVE....
KATHLEEN
Kathleen, I've just seen this and seen that my reply never took for whatever reason, so my message must have seemed really ignorant! My apologies, I will attempt to rewrite my response and hope it behaves this time.
From my understanding of this, yes a styloidectomy can help glosso, but only when it hits you in the throat, I was scheduled to have the surgery, but my pain is in the ears also, and when that's where the distribution is, it's most likely that the only thing to help will be an intra cranial neurosurgery procedure rather than the ENT intervention, so my tusk removal got cancelled.
I've heard that for some folk that the styloidectomy can make the ear pain much worse, but I have no personal experience of that so I can't say with any certainty.
I've got a couple of links detailing it, saying that when it's ear based that there's no real point in the styloidectomy, so I will see if I can fish them out for you.
Much love and my apologies again for the dissappeared post.
Gracie xxx
thank you so much
The information advising that this is probably a bad course of action is listed here:
http://www.sma.org.sg/smj/4010/articles/4010ra1.htm it states the following:
"The only caution with the pharyngeal approach is that symptom control is inadequate if the distribution of pain is in the ear. In the tympanic type of neuralgia, the hypersensitivity and irritability of the Jacobson’s nerve is a major contributor to symptomatology. The pharyngeal approach to resection of the glossopharyngeal nerve, by itself, is likely to fail. It should be combined with a tympanotomy and avulsion of the nerves of the tympanic plexus to deal with the contribution by the Jacobson’s nerve."
and here: http://www.merckmanuals.com/professional/sec16/ch219/ch219j.html it advises
"If pain is restricted to the pharynx, surgery can be restricted to the extracranial part of the nerve. I f pain is widespread, surgery must involve the intracranial part of the nerve."
Hope that's of some use. xxx