Hello… I’m very new to this website and would greatly appreciate any kind of feedback on my problem at hand. I’m 24 yrs old and have atypical bilateral TN. I was diagnosed a little more than three years ago by my regular doctor and have had two (unsuccessful) neurologists in the past that have given me MRI’s, and when they showed up clear, simply given me drugs and told me to come back in six months- to see how the drugs are working and thats about it. Currently I’m on Neurontin- 9oomg a day, which works sometimes and doesn’t work other times. Last year, neurologist #2 put me on Tegretol, which made me mostly pain free- though side effects set in and I experienced depression, thoughts of suicide and other horrid things. I flushed the pills down the sink and went back on Neurontin, which has still to this day not given me any problematic side effects of that nature (but I still get the typical side effect stuff on the pill bottle).
This has led me to my current situation - my mother is convinced that the TN all began due to a car accident I and some of my family members were in- she has her chiropractor that she goes to for her aches and pains… not diagnosed back pain or medical issues- instead just when she feels uncomfortable or when she sleeps wrong on the couch. I’ve always told my mother that she needs to take care of her body better, but she’s very stubborn… its been in one ear and out the other for years, just going to the chiro when she feels off. She’s convinced that if I went to her chiropractor, all my pain will magically go away - many years ago, when I was 15, she had me go to another chiropractor (who has since retired) for when I had an overuse injury with my hands from playing musical instruments. He said all kinds of things were wrong with my spine- and from there I saw him twice a week, which led to a year of me being sick and weak all the time (once I stopped going, massage therapy over four long years in my arms/hands gave me results).
I want to try things that will help with my TN … but I am deathly afraid of what might happen if I go to a chiropractor again, considering what it did to my body years ago. The issue of my mother also is largely problematic- since I’m not physically sick (like a cast or visible scars), she has been against me taking pills. Against recognizing that I need any kind of medical attention. And often doesn’t believe me when I say that the loudness of the television and other sounds/actions affect me, or that side effects from Neurontin such as clumsiness, aches, nausea etc etc etc exist.
Am I seeing things wrong in this situation? I care about my body. I don’t want to experience what I did in years past, and I’m in enough pain as it is from TN- and I did a craniosacral/massage therapy combo in the last year that didn’t do much other than basic relaxation (ultimately too costly in both money and time for me to stay with), so I’m very skeptical that the chiropractic route has the potential do anything more than that. I’m still living at home, though I only have to listen to my mom when she feels like voicing her opinion about these matters- she doesn’t control me, though in some ways she does since I’m still under her roof. I dunno. Since everyone drinks the chiropractic kool-aid in my house, and their minor body problems were helped, everyone thinks my pain is in my head and will be fixed with that. Time and time again - no matter what I tell my family about TN, and how my pain feels, I don’ t have much of any support.
Thanks for any comments or advice you all might post… I very much appreciate any outside opinion on this