Please share how you cope and get through your daily life routine
typically I bury myself in a project or multiple projects until the point where someone asks "good or bad" and I can respond "I dont know I have not gave it a thought" ....guess this strategy is to accept my TN as its own beast and give it as little attn as possible. It seems to feed on it, then I begin to be much, much more aware of each swing/episode.
I do this with activities such as gardening (although its more of basic weedpulling,etc as I am such a novice), learning to play the guitar, learning a new language, working out (run, lift, etc) , cooking, and playing golf --> have reached a place where I to focus so darn hard that it has my mind so preoccupied that it almost blocks the sensory "feelings" I am receiving from the TN (ie feelings such as railroad spike through the cheek or letter opener up through the teeth out the cheek or my fav feeling as if someone has embedded razor blades into the side of my head...) Regardless, this approach works for me.
Lately I have been experiencing some bouts of sadnesss almost "uncontrollable sadness" - maybe I have a case of the "why me"s but I am looking to learn how other copes.
Hi Albee,
Interesting thoughts on the sadness as I went throught the same thing and don't quite know why.
As far as coping, you are doing the right things to keep your mind off the problem. However, get to the root of the problem and see a Dr. about drugs to hopefully make it go away...if you haven't already. I went as far as I can with the drugs and then had the mvd surgery. Pain gone (for now) hopefully forever and I can now get on with my life.
Sounds simple, but be very pro active in managing this monster to get rid of it.
Good luck
Albee, you are still grieving for your dear friend who passed away. It took at least a year when our couple BF male partner passed away tragically age 39. It could be that causing the sadness you feel. I also threw my self into gardening to help diffuse the pain. You can see the results in my photo's. My garden is dedicated to Martyn.
Albee said:
typically I bury myself in a project or multiple projects until the point where someone asks "good or bad" and I can respond "I dont know I have not gave it a thought" ....guess this strategy is to accept my TN as its own beast and give it as little attn as possible. It seems to feed on it, then I begin to be much, much more aware of each swing/episode.
I do this with activities such as gardening (although its more of basic weedpulling,etc as I am such a novice), learning to play the guitar, learning a new language, working out (run, lift, etc) , cooking, and playing golf --> have reached a place where I to focus so darn hard that it has my mind so preoccupied that it almost blocks the sensory "feelings" I am receiving from the TN (ie feelings such as railroad spike through the cheek or letter opener up through the teeth out the cheek or my fav feeling as if someone has embedded razor blades into the side of my head...) Regardless, this approach works for me.
Lately I have been experiencing some bouts of sadnesss almost "uncontrollable sadness" - maybe I have a case of the "why me"s but I am looking to learn how other copes.
Hi Bob - yes today is 9 months so I have been through the "cycle through meds to find a cocktail that works drill" as well as head a Glycerol injection (nov) and Gamma Knife (jan), but no silver bullet for me yet. Im def doing better and have been dubbed a "super coper" but still looking for new ways to cope with the bad weeks.
bob said:
Hi Albee,
Interesting thoughts on the sadness as I went throught the same thing and don't quite know why.
As far as coping, you are doing the right things to keep your mind off the problem. However, get to the root of the problem and see a Dr. about drugs to hopefully make it go away...if you haven't already. I went as far as I can with the drugs and then had the mvd surgery. Pain gone (for now) hopefully forever and I can now get on with my life.
Sounds simple, but be very pro active in managing this monster to get rid of it.
Good luck
Goodness Jackie, you just may be right I was up at 3AM having a conversation with him, his spirit of staying strong and fighting through the pain remains strong in me. He was my "rock" up until he passed. Today marks 9 months to the date when my TN broke out on the scene so its a mix I guess. Thanks for the idea
Jackie said:
Albee, you are still grieving for your dear friend who passed away. It took at least a year when our couple BF male partner passed away tragically age 39. It could be that causing the sadness you feel. I also threw my self into gardening to help diffuse the pain. You can see the results in my photo's. My garden is dedicated to Martyn.
Albee said:typically I bury myself in a project or multiple projects until the point where someone asks "good or bad" and I can respond "I dont know I have not gave it a thought" ....guess this strategy is to accept my TN as its own beast and give it as little attn as possible. It seems to feed on it, then I begin to be much, much more aware of each swing/episode.
I do this with activities such as gardening (although its more of basic weedpulling,etc as I am such a novice), learning to play the guitar, learning a new language, working out (run, lift, etc) , cooking, and playing golf --> have reached a place where I to focus so darn hard that it has my mind so preoccupied that it almost blocks the sensory "feelings" I am receiving from the TN (ie feelings such as railroad spike through the cheek or letter opener up through the teeth out the cheek or my fav feeling as if someone has embedded razor blades into the side of my head...) Regardless, this approach works for me.
Lately I have been experiencing some bouts of sadnesss almost "uncontrollable sadness" - maybe I have a case of the "why me"s but I am looking to learn how other copes.