Good morning everyone
Well it is for 15-20 minutes each day. I found myself rethinking how difficult TN is on all members of my family. It has worn my family down along with myself. The other day sat down with hubby and explained to him that I understand how difficult this has been on him. The sacrifices are huge. Our social life is minimal at best. He attends functions alot without me. I find myself telling him to go alone. i know this is terrible for him be ause he wants me with him. He is desperately wanting to be a couple again. The sacrifice made is to let him go without me, do ot want him to stay behind because of me. The other day was hard was in a round of attacks that came all day long. Had a bit of a spat. The next day he apologized because he knows me getting upset sets the attacks off even more. He wanted me to know he is on my side. I know he is but sometimes it overwhelms us both. Its the nature of the beast. Knowing we talk to one another helps. He wants so much for me to feel better. We have lost so much time with each other. I was 39 when I had my first back surgery anf 7 more came after that and multipile other surgeries , so total 17 years in and out of the hospital. I guess for me I have accepted this for my life. For my hubby its very difficult he has sacrificed so much for us. So her I take pause to remeber that TN is not my disease its our disease. So today share a hug with your family and never lose sight that the power of the love of your family is the glue that keeps us strong and resilient against the beast!
My Best
Joannexo
Well Joanne, it’s brave to talk about the deeply personal moments that have such a big effect on the course of our illness. Wishing strength to you and your husband in the hours and days and weeks to come.
Peace and Happiness
Bellalarke
Thanks Bellalarke I believe the emotional component of how this disease afflicts the family as well as ourselves is important without getting into details. It truely does test our resolve Its difficult enough to deal with physical pain on a daily basis without the added emotional pain that trys to tear us down. Strength and Peace to everyone!
My Best
Joannexo