2 appointments at hopkins. one is facial pain and the other is reconstructive plastics. Neurology is reviewing my case. Spasticity is not sure if this is the area I belong in. Its a good feeling when an institution of this caliber is reviewing my case. At home we plan to do an emg guided seies of injections into the neck and trapezius to relax the muscles. In may I return for a different reconstructive surgeon and wherever neurology places me. I still have ocular appts. It seems the closing of the lids may be due to the pressure of the scar tissue. i am setting up an evaluation of the lumbar region where i have moderate scoliosis. I also need to evaluate my vascular system. I am wearing a back brace to avoid the pull of the scoliosis. My posture is improved and it works against that pull. I am actually using my gadgets and it helps. Lowered the patch 25mg from 100 to 75. I am really trying to take a positive approach and I finally have dr. support. I dont know if the botox will work but i must work at this. Its been 10 years and i need to move foward,
thank you Red and some wonderful people all working together. I would be nowhere without this website. It has given me hope and direction. I am very grateful and lucky to be here. I just want to wave a wand and have all of us be well again. Any advance that helps any one of us needs to be told, because it may help another member.
A special thanks to Red for getting me back on track.