OK, here goes…
Im 37 year old male, have been taking care of my teeth pretty well, no cavities since i was about 15. For some weird reason both of my upper jaw lateral inscicors became infected within months of each other when i was about 22 years old, no cavities, no trauma. First my right inscisor threw a huge absess in my palate and required emergency root canal. After the root canal was done i was pain free and ha no issues for 2 months, then my left side inscisor became infected, no absess but x-ray showed clear signs of infection and it was painful.
Judging by the x-ray the dentist said root canal would be 50% or less, but we tried, so he did a temporary root canal. But the pain didnt get much better… So i had to extract it. Then put in a tooth implant. This was all done about 15 years ago.
Fast forward to today, i´ve been symptom free, painfree for 15 years, but started getting medium level pain from the root canaled tooth, went to the dentist and had them redo the root canal, opened up, cleaned out and temporal filling.
Felt great immediately, next day aswell, but then on the evening i started getting severe pain on the left side of my mouth instead. Around the dental implant area.
Went back to the dentist, they x-rayed the implant tooth, the teeth next to it, which showed no signs of infection whatsoever. They did vitality test with electricity, pressure test, bite test, tap test and said everything looked fine.
The pain has only increased since then, and mostly the pain is focused around the implant, the canine or the front tooth next to the implant. My palate is often sore around the implant, got a burning pain that comes and goes and seems to be focused around the implant site but also the “chewing tooths” on that side aswell.
I´ve seen dentists, jaw surgeon, ENT, neurologist and odontologist.
The odontologist could see from the x-ray that i do have inflamation in the jaw above where the root canal was made. And have opened up the root canal again and cleaned it out and did yet another temporary root canal.
Nothing has been done for my left side pain and nobody wants to do anything since they can’t see what’s wrong. My general practictioner says it might be something to do with the titanium in the implant but the only way to know for sure is to remove it.
I am on 400mg gabapentin 3x daily and while it takes a little bit of the pain away, i am far from living a normal life anymore. In fact i feel like my life is absolutely over.
I just tried getting back to work 50% after a 6 week sick leave due to the pain. Some days i can do meaningful work but often i am on the verge of a breakdown and so close to crying all the time, many times im in pain and tears are gathering in my eyes while i am working…
I just can’t accept that there is nothing wrong with my teeth since it feels like it so clearly is coming from there. And also even if i could accept it, it means i need to accept a life of intense pain and dragging my daughters (9 year old) quality of life down with it…
The neurologist did not think this was trigeminal neuralgia (his words) and i said, no i know it’s not, i dont have episodes or shocking pain. But my GP and dentist wanted to diagnose me with atypical trigeminal neuralgia. I got the feeling that the neurologist didnt have a good understanding of what that was, but i might be wrong. Anyhow, he told me “You have only had this for 6 weeks and it is so localized around this area that it is far too early to put such a diagnosis”
My energy is drained, i told my wife that i am almost ready to give up now. And i´ve written a letter with stuff that she needs to know in case i “disappear”. She says it would be selfish of me to commit suicide and that i need to consider what it would do to our daughter… But how on earth do i cope with living with this pain?