I have had two episodes only. Both on airplanes. Three days apart. Last episode was over two weeks ago. Could this just have been a freak thing or am I doomed to have another episode soon?
I episodes were several months apart in the beginning. So far apart that I didn't link them together! But in your case the air pressure could have definitely caused them for you. So it doesn't mean you will have another soon. Two weeks ago I had my first attack in my left side (my has always been on the right). So I am kind of in the same boat as you...just never knowing when the next one will come!! I hope you won't have another anytime soon :)
Thanks for sharing that info. I just wonder if the Dr. is going to take me seriously when I don't have more to tell him. I have an appt. on Dec. 20th with a Neuro. So I go in and say, yeah this happened and I never want it to happen again. looked on Google, diagnosed myself so give me some drugs? Thinking that may not fly???
SaraM29 said:
I episodes were several months apart in the beginning. So far apart that I didn't link them together! But in your case the air pressure could have definitely caused them for you. So it doesn't mean you will have another soon. Two weeks ago I had my first attack in my left side (my has always been on the right). So I am kind of in the same boat as you...just never knowing when the next one will come!! I hope you won't have another anytime soon :)
Izzy, I went about four years before diagnosis because I always thought it was referred tooth pain. The episodes would only last a couple weeks and then be gone for months at a time. Then about 2 months ago, Couldn't touch my lip without getting a sever jolt. Lasted about 2-3 weeks. That's when I finally went to neuro and was diagnosed. Good luck with your appt. and God bless.
Hi Izzy. There is nothing typical about TN. Sorry to tell you that. I am not going to tell you my story - it is too depressing. But the only advice I can give is to be prepared for the unexpected. Just one example - On three occasions I was admitted to hospital. My GP and the neuros were convinced I had had three small strokes. They said evidence was there. I went completely lame on the left side of the body. First paralysis lasted for weeks. Doctors said they had evidence to prove it on the scans that I had had taken. However, after I was diagnosed with TN discovered the TN mimics strokes. This is in my case. I am not saying this is a general occurrence. The last paralysis was in April this year. I was in my psych's office. I reassured her it was TN. They wanted to rush me off for more scans etc. and to be booked into hospital. I flatly refused and said: "This is 'normal." It helps now when I get that numbing sensation down my left side to know it is NOT a stroke.
Sorry but that is all I can tell you about "there is nothing typical" about TN.
But I have found that if I have had a very stressful time it tends to bring on a severa attack.
All the best.
Write some more if you just want some encouragement.
Hi,
As I’ve been reading, everyone is different but for me, I had my first at the end of August. I’ve had 26 attacks and most have put me down for at least and hour. My longest attack was 2.5 hours long. I’ve been on carbamezapine and gabapentin but am not doing well with all the side effects. I hope yours don’t progress as rapidly as mine have.
Izzy, my best advice to you is simply to write down what happened, what the pain felt like, where you were, what you were doing etc. iF it happens again do the same… If the pain gets out of control ( you’ll know) get to a doctor ASAP and get treatment for your pain.
As someone else mentioned TN is not “typical” it presents differently for each of us, I wish it was cut and dried… I hope it doesn’t happen again for you, but if it does we’re here for you.
(( hugs )) Mimi