The 1st thing I did when I started getting the shocking and pounding pain in my face I have TN1 and 2 left sided was go to my dentist to make sure there was nothing wrong with my teeth lol. I drove the poor guy NUTS because I was at his office at least 2~3 times a week begging him to take another look, do another x~ray, I would pay for it, but he had to find out what was causing this pain. He did everything and told me I was fine. I even wanted him to pull a few teeth out and that is when he had had it. He called my husband in the room and said you need to have her seen by a specialist because there is NOTHING wrong with her teeth or her jaw.
My point to you is if your dentist cant tell you with absolute certainty that nothing is wrong with your teeth by looking and doing and x ray its time to get a NEW one.
Woman with the electric teeth said:
Ah, I'm TN1 so electric shocks are the norm for me, at least without meds. But I have constant residual pain in my teeth/tooth. My doctor put the worry into me by announcing, in the middle of a conversation about dosing me with B12, "We're not even sure you have TN; it could be a dental pain". Now he says. But I have always had a sensitivity to sweet, which seems to be unusual. I'm trying to see if anyone else has that as a trigger on this forum. It's also recently started hurting when I bite down on it, but I think that's not unusual with TN.
But my real concern is whether it's possible for the anti-convulsants to mask the electric shock pains and leave this residual pain if I had a broken tooth. The trouble is, it's a healthy tooth, without restorations, so I am VERY reluctant to do anything to it. If only dentists had an efficient way of testing them for cracks, but they don't.
Hi Lisa, Yes I was tested for tons of things, but that was by my primary care Dr. I didn't have a B12 deficiency but I had a very very low D deficiency and have to take 2000 iu a day sometimes twice a day or I get all crampy. Its awful and its because I do not go out of the house at all because of this TN pain.
I am sorry to hear that you are having such a hard time, but feel free to ask me anything anytime. Trust me I have been through just about everything.
Hi Pain in the face - first up, your name is almost as good as mine! Maybe we should run that as a competition - who can design the most evocative user name for TN!
Yeah, I'd love to pick and choose my dentists - although the one I have seems sweet and kind - but I'm in the UK and we have the NHS to deal with. We can go private but it is very expensive - far more than you are paying in the US. I simply can't afford that. Because of the TN I don't work and my partner is a freelance - we live on a very tight budget, so it just isn't feasible. And in fairness to the dentist - this is a really hard thing to diagnose. There just isn't much out there to test for hairline cracks in teeth. I think I'm just going to stick with my TN diagnosis for now and maybe go get some tests done, such as they are, in the New Year. Best I can aim for.
Pain in the Face 1968 said:
The 1st thing I did when I started getting the shocking and pounding pain in my face I have TN1 and 2 left sided was go to my dentist to make sure there was nothing wrong with my teeth lol. I drove the poor guy NUTS because I was at his office at least 2~3 times a week begging him to take another look, do another x~ray, I would pay for it, but he had to find out what was causing this pain. He did everything and told me I was fine. I even wanted him to pull a few teeth out and that is when he had had it. He called my husband in the room and said you need to have her seen by a specialist because there is NOTHING wrong with her teeth or her jaw.
My point to you is if your dentist cant tell you with absolute certainty that nothing is wrong with your teeth by looking and doing and x ray its time to get a NEW one.
Woman with the electric teeth said:
Ah, I’m TN1 so electric shocks are the norm for me, at least without meds. But I have constant residual pain in my teeth/tooth. My doctor put the worry into me by announcing, in the middle of a conversation about dosing me with B12, “We’re not even sure you have TN; it could be a dental pain”. Now he says. But I have always had a sensitivity to sweet, which seems to be unusual. I’m trying to see if anyone else has that as a trigger on this forum. It’s also recently started hurting when I bite down on it, but I think that’s not unusual with TN.
But my real concern is whether it’s possible for the anti-convulsants to mask the electric shock pains and leave this residual pain if I had a broken tooth. The trouble is, it’s a healthy tooth, without restorations, so I am VERY reluctant to do anything to it. If only dentists had an efficient way of testing them for cracks, but they don’t.
Yep, sure was, Lisa. I was 384 - in the 'grey zone', but I was, and am being currently, treated for deficiency - at my request, and after a great deal of argument.