I need some positive advice. I am one of the few "luckly ones"who has b-lateral TN. I have some kind of pain 24/7.
I am losing hope. I need to know if anyone else suffers from bi-lateral and I need advice from my fellow suffers as to what they would do. The pain is about equal on both side. I need relief. I am considering MVD but honestly don t know what side to do it on. I had the glycerioll rhizotomy done on the one side, but it did not give me any relief, in some ways it made it worse. I am starting to lose my sanity, I reaching out for help. Any advice?
I too have bilateral TN.
In my case I never have the pain on both sides at once…it’s one side or the other.
I had MVD on my left because the right was quiet and the left side was resistant to meds and worsening.
Has your neuro surgeon suggested a side?
I guess if both are equally bothersome (to put it lightly) then it doesn’t matter which side you start with.
Have you consulted with more than one NS? Hope you find relief soon gem!!
(( hugs )), Mimi